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. Author manuscript; available in PMC: 2017 Jul 1.
Published in final edited form as: Autism. 2016 Jun 15;21(5):622–634. doi: 10.1177/1362361316650394

Table 3.

Application of DOI components.

Adoption process component Study-specific issue Lessons learned
Knowledge
 Awareness Families not aware why they were referred
Families not aware of child's diagnosis or difficulty
Families not wanting to identify child as a “problem”
Many children without previous diagnosis
Don't require previous diagnosis, use “behaviors consistent with ____”
Provide diagnostic and/or behavioral information only if requested
Persuasion
 Complexity Financial strain and resulting pressures make participation in research and interventions difficult
Difficulty engaging in parent training sessions
Difficulty understanding study forms/language barriers
Flexible schedule (including Saturdays and Sundays, early morning and late evening)
Flexible training modalities, charla model
More frequent contact via text and phone
Study staff available to go through the forms with families
 Relative Advantage Many had tried to seek care but end up receiving information through less expert staff who happen to speak Spanish
Parents wanted to form relationships with study staff before trusting their “expertise”
Bilingual staff connected families with services, which resulted in families being more willing to engage in study interventions
Study staff respected the importance of personalismo
 Compatibility Families needed consent from all important family members before signing consent forms
Mental health/neurodevelopmental issues often stigmatized
Community building takes time Issues of trust in consent process
Families hesitant to include child's data in a database
Schedule multiple sessions with families
Allow extra time for consent process
Appropriate self-disclosure by family navigator to address stigma
Plan to slowly build up recruitment over time
Use trusted messengers
Don't require video taping
Show families what databases look like and explain the de-identification process
 Observability Many families thought they had never met anyone who had a child with ASD or ADHD Use of family navigator's self-disclosure
Use of parent videos in trainings
Parent sharing opportunities
Word of mouth