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. Author manuscript; available in PMC: 2018 Feb 1.
Published in final edited form as: J Genet Couns. 2016 Jun 16;26(1):122–132. doi: 10.1007/s10897-016-9987-0

Table 1.

Overview of DD session

Plenary Introduction Overview of the agenda for the day
Small Group:
Session 1
Ice breaker exercises
Video, “Whole Genome Sequencing and You”1
Discussion focusing on reactions to the video
Expert Presentations Each presentation lasted 50 minutes, including a 15 minute question and
answer session.
Presentation 1: “What can we learn from sequencing our genes”
Presentation 2: “Ethical issues in sequencing our genes”
Small Group:
Session 2
Participants were given a chance to reflect upon and discuss the 2 presentations
and general thoughts on genomic sequencing. (30 minutes)
Policy Presentation Explanation of proposed policies regarding return of secondary findings in 3
situations – medically actionable results, adult-onset conditions, and carrier
status. For each policy, participants were asked to consider “Should this be the
genomic sequencing policy?”
Small Group:
Session 3
Discuss & vote on proposed policy: “Patients are given medically actionable
results that are not related to the reason for the sequencing. Patients have a
choice: They can ask to NOT be given these results.” (30 minutes)
Small Group:
Session 4
Discuss & vote on proposed policy: “Children and their parents are not given
results for adult-onset conditions that are not related to the reason for the
sequencing. Children and their parents have no choice: They will not be given
these results even if they want them.” (30 minutes)
Small Group:
Session 5
Discuss & vote on proposed policy: “Patients are not given carrier status results
that are not related to the reason for the sequencing. Patients have no choice:
They will not be given these results even if they want them.” (30 minutes)
1

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