Table 1.
Plenary Introduction | Overview of the agenda for the day |
---|---|
Small Group: Session 1 |
Ice breaker exercises |
Video, “Whole Genome Sequencing and You”1 | |
Discussion focusing on reactions to the video | |
Expert Presentations | Each presentation lasted 50 minutes, including a 15 minute question and answer session. |
Presentation 1: “What can we learn from sequencing our genes” | |
Presentation 2: “Ethical issues in sequencing our genes” | |
Small Group: Session 2 |
Participants were given a chance to reflect upon and discuss the 2 presentations and general thoughts on genomic sequencing. (30 minutes) |
Policy Presentation | Explanation of proposed policies regarding return of secondary findings in 3 situations – medically actionable results, adult-onset conditions, and carrier status. For each policy, participants were asked to consider “Should this be the genomic sequencing policy?” |
Small Group: Session 3 |
Discuss & vote on proposed policy: “Patients are given medically actionable results that are not related to the reason for the sequencing. Patients have a choice: They can ask to NOT be given these results.” (30 minutes) |
Small Group: Session 4 |
Discuss & vote on proposed policy: “Children and their parents are not given results for adult-onset conditions that are not related to the reason for the sequencing. Children and their parents have no choice: They will not be given these results even if they want them.” (30 minutes) |
Small Group: Session 5 |
Discuss & vote on proposed policy: “Patients are not given carrier status results that are not related to the reason for the sequencing. Patients have no choice: They will not be given these results even if they want them.” (30 minutes) |
© 2015 Icahn School of Medicine at Mount Sinai