TABLE 1.

Areas of Interview Inquiry

Parent participants
1. Was this hospital admission planned or unplanned?
2. How has hospitalization affected your child and family?
3. Do you feel as though you’ve participated in medical decision-making for your child during this hospitalization?
a. If yes, please tell me about this.
b. If no, would you like to be more involved in the medical decision-making for your child?
c. How would you like to be involved?
4. When you’re admitted to hospital, when do you start thinking about going home?
5. How would you like to be involved in planning your child’s discharge from the hospital?
6. When you think about your child’s discharge from the hospital, what are your goals for your child and your family?
7. We know that there are many changes that can happen when a child leaves the hospital to go home. What might prevent a smooth transition from the hospital to your home?
a. What things related to medical care might impact your transition home?
b. What family-related factors might impact your transition home?
c. Are there any factors related to home, school, or work that might impact your transition home?
8. Who is available to provide support for you and your child when you go home?
9. Does your child receive nursing services at home? If so, have you ever had a problem with home nursing services soon after you’ve been discharged from the hospital?
10. In what ways might your child’s discharge impact the other people living in your home? (if applicable)
11. What’s most important to you when you go home?
12. Given that you know your child and your family the best, how would you plan their discharge from the hospital?
13. Has your child ever had to be readmitted to the hospital shortly after you’ve gone home? If so, when you think back on this, could anything have been done prior to hospital discharge to prevent this?
14. Has your child ever had a mistake in a medication at home that happened soon after their discharge from hospital? If so, when you think back on this, could anything have been done prior to hospital discharge to prevent this?
Health care provider participants
1. What proportion of your practice time is spent working with CMC and their families?
2. How would you describe your involvement with these children’s hospital-to-home transitions in the inpatient setting? Outpatient setting?
3. Thinking about when these children are discharged from the hospital, what factors do you think have the greatest impact on their successful transition home from the hospital?
4. In your experience, what is most difficult for families as they transition home from the hospital?
5. What do you see as patients’ and families’ main goals for their hospital-to-home transitions? Are they unique to CMC?
6. What could hospital-based health care providers do to improve families’ preparation for discharge and hospital-to-home transitions?
7. How can hospital-based providers, including nurses, physicians, and other services, best support families in their hospital-to-home transitions?
8. What resources provide support for families of CMC upon discharge?
9. Thinking about the children and families that you care for, how do you think families should be involved in planning their discharge from the hospital?
10. Is there anything else about discharge processes for CMC that you think would be helpful for us to hear?