Table 3.
Main findings sorted as themes, code groups, and sub-code groups
| Themes | Code groups | Sub code groups |
|---|---|---|
| The complex caring role of the family caregiver | ||
| Added responsibilities and new tasks | Guiding and assistance in activities of daily living | Providing assistance in • practical tasks • personal hygiene Being sensitive to the persons’ psychological needs Adapting to changes in person’s social skills |
| Emotional and relational challenges | Distressing emotions | Feeling • guilty conscience • sorry for • being tied down |
| Demanding interaction | Increased dependency Disagreements and misunderstandings Confrontations Nagging Lack of interests and engagement Adapt to the needs of the person with dementia |
|
| Resources affecting the situation positively | Acceptation and adaptation | Accept the situation Find new solutions Use humor With God’s help |
| Support and help | Help from friends and family Seek knowledge in the literature Receive professional help |
|
| Positive changes in the relationship | Doing things together Positive contact Positive feedback |
|
| The influence of the DCCs on the family caregiver situation | ||
| Respite – assistance to meet the needs of the person with dementia | More fellowship | Inclusion Social support |
| Meeting basic needs | Nutrition, sleep, and rest | |
| Improved structure in everyday life | Schedule of daily events | |
| More variation, activity and meaning | Physical activity Do something meaningful Get out of home |
|
| Positive and negative influence on the relationship | Higher quality of time spent together | Less nagging More calm, tired, and positively exhausted Something to talk about |
| Easier to cooperate with | Increased wellbeing Increased engagement and level of function Fewer conflicts |
|
| Hard feelings and situations | Tricking and lying | |
| Increased separation time - more time to meet their own needs | Increased time to spend on own needs | Rest and relaxation Activities Activities Work undisturbed Practical activities Family and friends Feeling of freedom |
| Needs that are not met by the DCCs | Flexibility | Flexible and long opening hours and days |
| Information, communication and information | Needs of • information about schedule and content of activities in the DCCs • feedback about the participant • information about dementia-related topics (was obtained in classes for family carers ) |
|
| Quality and content designed for people withdementia | Lack of tailored activities Lack of inclusion and social support |
|