Table 2.
Clinical characteristics and NPCS scores for the total sample and all disease stages
| Variables | Complete sample (N =84) | Stage I (n = 12) | Stage II (n = 22) | Stage III (n = 19) | Stage IV (n = 14) | Stage V (n = 17) | Sign. | |
|---|---|---|---|---|---|---|---|---|
| Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | |||
| Disease duration | 6 (7) | 2 (2) | 5 (6) | 7 (5) | 8 (7) | 11 (7) | P < 0.001 | |
| Total FAS score | 15 (17) | 24 (2) | 20 (2) | 15 (4) | 5 (3) | 0 (2) | P < 0.001 | |
| Independence scorea | 60 (26.5) | 95.8 (5.1) | 79.1 (2.9) | 64.7 (6.3) | 40.4 (10.8) | 20.9 (5.7) | P < 0.001 | |
| n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | P-value (2-sided) | ||
| Comorbid conditions | No (ne) | 48 (57.1) | 7 (58) | 9 (41) | 9 (47) | 10 (71) | 13 (76) | 0.143 |
| Yes | 36 (42.9) | 5 (42) | 13 (59) | 10 (53) | 4 (29) | 4 (24) | ||
| NPCS variables | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Sign. | |
| Total scoreb | Needs | 21 (17) | 7.5 (6) | 11 (6) | 23 (12) | 29 (7) | 28 (10) | P < 0.001 |
| Gets | 13 (16) | 3 (3) | 6.5 (8) | 13.5 (12) | 21 (7) | 21 (10) | P < 0.001 | |
| Unmet needs | 6 (6) | 3 (4) | 5 (4) | 8 (7) | 6.5 (10) | 6 (9) | P = 0.013 | |
| Domain score Health and personal care | Needs | 11 (7) | 6 (5) | 7.5 (5) | 11.5 (5) | 13.5 (5) | 14 (3) | P < 0.001 |
| Gets | 8 (6) | 2.5 (2) | 5 (6) | 6.5 (6) | 9 (4) | 9 (7) | P < 0.001 | |
| Unmet Needs | 3 (4) | 2 (3) | 2.5 (3) | 5 (4) | 4 (5) | 4 (6) | P = 0.028 | |
| Domain score Sosial care and supportc | Needs | 10 (10) | 2 (3) | 4 (2) | 11 (7) | 13.5 (8) | 14 (2) | P < 0.001 |
| Gets | 5 (10) | 0 (1) | 1.5 (2) | 5.5 (6) | 11.5 (4) | 11 (3) | P < 0.001 | |
| Unmet needs | 2 (3) | 1 (3) | 2 (2) | 2.5 (5) | 2 (6) | 2 (4) | P = 0.053 |
FAS Functional Assessment Scale, IQR Interquartile range, anormally distributed: reported mean (sd) and Anova; bone missing from stage III; cone missing from stage III; Needs = NPCS Part A; Gets = NPCS Part B