. Author manuscript; available in PMC: 2017 Nov 1.

Published in final edited form as: Dis Colon Rectum. 2016 Nov;59(11):1019–1027. doi: 10.1097/DCR.0000000000000695

TABLE 1.

Survey Measures

Topic area	Sources/Details
Health-related quality of life (condition specific)	City of Hope Quality of Life Colorectal Cancer (COH-QOL-CRC)^15,20
Health-related quality of life (general)	SF-12.2²¹
Social support	Duke-UNC Functional Social Support Questionnaire²²
Bowel function	Bowel Function Index (adapted to patients with and without ostomy)^18,23
Ostomy-specific questions	Developed questions about ostomy location, problems with ostomy equipment, self-care
Sexual activity	Developed questions about sexual activity, satisfaction, body image, functional problems. Adapted from COH-QOL-CRC and American Cancer Society’s Study of Cancer Survivors²⁴
Diet & Behavioral Modifications	Developed questions on typical eating patterns, adjustments since surgery Adapted from COH-QOL-CRC Developed questions asking what foods and beverages as well as other dietary behaviors help with bowel function Developed questions asking what supplements, medications or other products help with bowel function. Developed questions asking what exercises or activities help with bowel function.
Exercise	Physical activity Adapted from the Leisure Score Index from the Godin Leisure-Time Exercise Questionnaire²⁵
Smoking	Current smoking status, quit date, pack years, use of other tobacco products
Work	Adapted from the American Cancer Society’s Study of Cancer Survivors and COH-QOL-CRC
Demographics	Education, current height and weight, weight at time of surgery, race/ethnicity, household income, marital status
Greatest challenge	Open-ended question (reported in this manuscript)