Table 1.

Sample characteristics (N=228)

Characteristics	Mean ± SD or n (%)	Range
Sociodemographics
Age, years	51.0±13.3	21.0–82.0
Gender
Male	69 (30.3)
Female	159 (69.7)
Race/ethnicity
Non-Hispanic White	208 (91.2)
Other	20 (8.8)
Years of education	15.6±2.8	4.0–22.0
Health insurance
Insured	211 (93.4)
Uninsured	15 (6.6)
Clinical
Years with vasculitis	6.4±6.2	0.5–36.5
Perceived vasculitis severitya	4.5±2.3	1.0–10.0
Relapse status
Currently relapsing	64 (28.4)
Not currently relapsing	161 (71.6)
Self-reported vasculitis type
Granulomatosis with polyangiitis (formerly Wegener’s granulomatosis)	136 (59.6)
Microscopic polyangiitis	18 (7.9)
Eosinophilic granulomatosis with polyangiitis (formerly Churg–Strauss syndrome)	29 (12.7)
Anti-neutrophil cytoplasmic autoantibody disease	5 (2.2)
Takayasu arteritis	11 (4.8)
Polyarteritis Nodosa	10 (4.4)
Behcet’s disease	4 (1.8)
Do not know	2 (0.9)
Other	14 (6.1)
Vasculitis medication adherenceb	4.3±0.69	1.6–5.0
Informationc	4.0±0.68	1.5–5.0
Motivationd	2.7±1.00	1.0–5.0
Behavioral skillse	4.1±0.74	2.0–5.0

Notes:

^aPerceived severity ranged from “not at all severe” to “extremely severe.”

^bPossible score range =1–5, higher scores indicate greater adherence.

^cPossible score range =1–5, higher scores indicate more vasculitis knowledge.

^dPossible score range =1–5, higher scores indicate higher motivation.

^ePossible score range =2–5, higher scores indicate higher levels of behavioral skills.

Abbreviation: SD, standard deviation.