Table 1.
Demographics of respondents to surveys, grouped by Program type
| All Respondentsa
N = 114 |
Adult Programs N = 57 |
Affiliate Programs N = 12 |
Pediatric Programs N = 43 |
|
|---|---|---|---|---|
| Program size, n (%)b | ||||
| < 50 adult patients | 38 (33%) | 4 (7%) | 11 (92%) | 22 (51%) |
| 50–99 adult patients | 31 (27%) | 18 (32%) | 0 | 13 (30%) |
| 100–199 adult patients | 27 (24%) | 21 (37%) | 1 (8%) | 5 (12%) |
| ≥ 200 adult patients | 17 (15%) | 13 (23%) | 0 | 3 (7%) |
| Percent referred/yearc, Median (IQR) | 3.5% (2.0%–6.4%) | 3.2% (2.5%–5.8%) | 5.0% (3.3%–7.5%) | 3.3% (0–10.0%) |
| Distance to lung transplant center, n (%) | ||||
| Direct affiliation | 39 (34%) | 27 (47%) | 2 (17%) | 9 (21%) |
| < 30 min | 16 (14%) | 6 (11%) | 1 (8%) | 9 (21%) |
| 30–75 min | 18 (16%) | 10 (18%) | 0 | 8 (19%) |
| 75–150 min | 16 (14%) | 7 (12%) | 3 (25%) | 5 (12%) |
| > 150 min | 25 (22%) | 7 (12%) | 6 (50%) | 12 (28%) |
| Years independently practicing CF medicine, n (%) | ||||
| < 5 years | 13 (11%) | 9 (16%) | 0 | 3 (7%) |
| 5 to < 10 years | 19 (17%) | 13 (23%) | 2 (17%) | 4 (9%) |
| 10 to < 15 years | 21 (18%) | 12 (21%) | 1 (8%) | 7 (16%) |
| ≥ 15 years | 61 (54%) | 23 (40%) | 9 (75%) | 29 (67%) |
IQR interquartile range, CF cystic fibrosis
aTwo respondents did not report Program type
bOne adult Program did not report size of the Program
cCalculated by division of number of referrals by total number of adult patients followed by program(s)