TABLE 4.
Strategies Used to Assist Siblings
| Strategies | Families,a n = 32 | Family Members, n = 109 | Parents, n = 50 | Grandparents, n = 6 | Patients, n = 18 | Nondonor Siblings, n = 24 | Donor Siblings, n = 11 | Health Care Providers,n = 15 | P, Adults Versus Childrenb |
|---|---|---|---|---|---|---|---|---|---|
| n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | ||
| Share information | 23 (72) | 62 (57) | 31 (62) | 3 (50) | 9 (50) | 15 (63) | 4 (36) | 6 (40) | .41 |
| Use social support | 23 (72) | 50 (46) | 26 (52) | 4 (67) | 5 (28) | 11 (46) | 4 (36) | 8 (53) | .10 |
| Take the siblings to the hospital | 19 (59) | 42 (39) | 21 (42) | 2 (33) | 7 (39) | 9 (38) | 3 (27) | 7 (47) | .58 |
| Virtual communications | 15 (47) | 34 (31) | 14 (28) | 3 (50) | 8 (44) | 8 (33) | 1 (9) | 13 (87) | .85 |
| Provide siblings with a special event or quality time | 12 (38) | 24 (22) | 12 (24) | 2 (33) | 2 (11) | 7 (29) | 1 (9) | 6 (40) | .44 |
| Assign the sibling a role or responsibility | 12 (38) | 23 (21) | 10 (20) | 1 (17) | 2 (11) | 7 (29) | 3 (27) | 6(40) | .70 |
| Switch off parents at hospital | 9 (28) | N/A | N/A | N/A | N/A | N/A | N/A | 12 (80) | N/A |
| Keep the sibling’s life as constant as possible | 8 (25) | 13 (12) | 8 (16) | 1 (17) | 2 (11) | 2 (8) | 0 | 5 (33) | .17 |
| Meet individually with a CCLS at the hospital | 7 (22) | 12 (11) | 7 (14) | 1 (17) | 2 (11) | 2 (8) | 0 | 15 (100) | .27 |
| Obtain counseling | 4 (13) | 6 (6) | 2(4) | 0 | 0 | 3 (13) | 1 (9) | 4 (27) | .42 |
N/A, not applicable.
a
Mentioned by at least 1 member of the family.
b
P values are derived from the comparison of adult and children strategy rates. To obtain the frequencies and percentages for adults, we sum the parents and grandparents. To obtain the frequencies and percentages for children, we sum the patients, nondonor siblings, and donor siblings.