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. Author manuscript; available in PMC: 2017 Jan 25.
Published in final edited form as: Arthritis Care Res (Hoboken). 2014 Feb;66(2):263–269. doi: 10.1002/acr.22117

Table 2.

Clinical, Functional Status, Health-Related Quality of Life, Individual, and Family Characteristics of the Sample

Proxy* Report
N=230
Self**
Report N=180

Variables (Unite or Range) Mean (SD) Mean (SD)
Clinical Variables
Pain VAS (1–10) 2.96 (2.70)
Physician’s Global Assessment VAS (1–10) 2.91 (2.52)
PedsQL Rheumatology Pain (0–100) 60.51 (25.43) 61.64 (25.94)

Functional Status
Childhood Health Assessment Questionnaire (CHAQ) 0.53 (0.70)
PedsQL Rheumatology Module Activities (0–100) 88.99 (17.22) 89.59 (16.61)

Health-Related Quality of Life
PedsQL Generic Total Score (0–100) 77.57 (17.23) 75.88 (15.74)

Individual Characteristics
Child Arthritis Self-Efficacy (CASE)
  Activity (0–4) 2.50 (1.22)
  Symptom (0–4) 1.90 (1.13)
  Emotion (0–4) 2.47 (1.29)
Pediatric Pain Coping Inventory (PPCI)
  Cognitive Self-Instruction (0–7) 4.78 (2.93) 6.33 (3.10)
  Problem Solving (0–10) 8.18 (3.41) 7.83 (3.53)
  Coping via Distraction (0–9) 6.90 (3.43) 7.86 (3.48)
  Seeks Social Support (0–9) 7.56 (3.32) 6.50 (3.62)
  Coping via Catastophizing/Helplessness (0–6) 5.28 (2.56) 4.68 (2.45)
Adherence
  Medication Adherence Self-Report Inventory (MASRI***) (0 – 100) 91.18 (13.90)
  PedsQL Rheumatology Module Treatment Problems (0–100) 68.02 (21.89) 69.88 (20.39)
Social Support Scale for Children (Harter SSSC)
  Parent (1–4) 3.68 (0.48)
  Classmates (1–4) 3.39 (0.54)
  Teacher (1–4) 3.45 (0.55)
  Friend (1–4) 3.51 (0.58)
Parent Emotion Distress Symptom Check List (SCL-10) (0 –4) 0.44 (0.54)
Family Environment Scale (FES T-Score) 56.59 (10.01)
*

Proxy Report is by parent except as noted;

**

Self Report by patients ages 5 and older;

***

MASRI is self-report for patient’s aged 12 years and older, proxy-report for patients less than 12 years old. Only Item E is used.