Table 2.
Clinical, Functional Status, Health-Related Quality of Life, Individual, and Family Characteristics of the Sample
| Proxy* Report N=230 |
Self** Report N=180 |
||
|---|---|---|---|
| Variables (Unite or Range) | Mean (SD) | Mean (SD) | |
| Clinical Variables | |||
| Pain VAS (1–10) | 2.96 (2.70) | ||
| Physician’s Global Assessment VAS (1–10) | 2.91 (2.52) | ||
| PedsQL Rheumatology Pain (0–100) | 60.51 (25.43) | 61.64 (25.94) | |
| Functional Status | |||
| Childhood Health Assessment Questionnaire (CHAQ) | 0.53 (0.70) | ||
| PedsQL Rheumatology Module Activities (0–100) | 88.99 (17.22) | 89.59 (16.61) | |
| Health-Related Quality of Life | |||
| PedsQL Generic Total Score (0–100) | 77.57 (17.23) | 75.88 (15.74) | |
| Individual Characteristics | |||
| Child Arthritis Self-Efficacy (CASE) | |||
| Activity (0–4) | 2.50 (1.22) | ||
| Symptom (0–4) | 1.90 (1.13) | ||
| Emotion (0–4) | 2.47 (1.29) | ||
| Pediatric Pain Coping Inventory (PPCI) | |||
| Cognitive Self-Instruction (0–7) | 4.78 (2.93) | 6.33 (3.10) | |
| Problem Solving (0–10) | 8.18 (3.41) | 7.83 (3.53) | |
| Coping via Distraction (0–9) | 6.90 (3.43) | 7.86 (3.48) | |
| Seeks Social Support (0–9) | 7.56 (3.32) | 6.50 (3.62) | |
| Coping via Catastophizing/Helplessness (0–6) | 5.28 (2.56) | 4.68 (2.45) | |
| Adherence | |||
| Medication Adherence Self-Report Inventory (MASRI***) (0 – 100) | 91.18 (13.90) | ||
| PedsQL Rheumatology Module Treatment Problems (0–100) | 68.02 (21.89) | 69.88 (20.39) | |
| Social Support Scale for Children (Harter SSSC) | |||
| Parent (1–4) | 3.68 (0.48) | ||
| Classmates (1–4) | 3.39 (0.54) | ||
| Teacher (1–4) | 3.45 (0.55) | ||
| Friend (1–4) | 3.51 (0.58) | ||
| Parent Emotion Distress Symptom Check List (SCL-10) (0 –4) | 0.44 (0.54) | ||
| Family Environment Scale (FES T-Score) | 56.59 (10.01) | ||
Proxy Report is by parent except as noted;
Self Report by patients ages 5 and older;
MASRI is self-report for patient’s aged 12 years and older, proxy-report for patients less than 12 years old. Only Item E is used.