Table 3.

Typical clinical characteristics of patients with sIBM based on the experience of 13 physicians from seven countries

Characteristics
Type of sIBM, mean proportion of patients, % (range)
“Fast progressing”a	12.7 (0– 30)b
“Slow progressing”	77.3 (20– 100)
Time from diagnosis to using an ambulatory aid, mean, years
Cane	3.9
Walker	6.4
Regular wheelchair	10.5
Motorized wheelchair	12.8
Patients using a caregiverc, mean proportion of patients, %
Professional caregiver/service	29.0
Unpaid caregiverd	75.0
Clinical characteristics of sIBM that patients have experienced
over the course of illness, mean proportion of patients, % (range)
Dysphagia	60.2 (25– 90)
Injurious fallse	44.3 (10– 100)
Injuries typically sustained by the patients who have experienced
an injurious fall, number of physicians selecting
Broken arm or leg	10
Broken hip	9
Sprains	7
Bruises	12
Head trauma	8

^aDefined as clinically significant deterioration in limb, bulbar or diaphragmatic strength over 4 months or less. ^bThe range reported in the table for proportion of patients with “fast progressing” sIBM is based on the following responses: 0% of patients, 2 physicians; 5% of patients, 3 physicians; 10% of patients, 2 physicians; 20% of patients, 5 physicians; 30% of patients, 1 physician. ^cExpressed as the proportion of patients who have progressed to the point of needing a full-time caregiver. ^dUnpaid caregiver can include, but is not limited to, a spouse, child or family member. ^eFalls requiring medical attention. sIBM, sporadic inclusion bodymyositis.