Table 1.
Characteristics of Lupus Outcomes Study Participants in 2013 (n=566)
| Demographic Characteristics and Socioceonomic Status
|
% of participants, unless indicated |
|---|---|
| Age* | 51.40±12.92 (20 - 66) |
| Female | 93.6 |
| Nonwhite | 42.2 |
| Education | |
| High School or Less | 18.4 |
| Some College or Associate Degree | 36.4 |
| Bachelor’s or Greater | 45.2 |
| Marital Status | |
| Never Married | 19.6 |
| Married or with Partner | 18.6 |
| Widowed, Separated, Divorced | 61.8 |
| Below 125% of Federal Poverty Level | 15.9 |
|
SLE and Overall Health Status
|
|
| Disease Duration* | 19.02±8.95 (1 - 50) |
| SLAQ Disease Activity - baseline* | 11.07±7.34 (0 - 34) |
| Change in SLAQ- baseline to follow-up* | -0.41±5.00 (-24 - 21) |
| BILD Disease Damage - baseline* | 2.83±2.69 (0 - 18) |
| Change in BILD - baseline to follow-up* | 0.46±0.78 (0 - 5) |
| BILD increase of ≥2 points | 9.4% |
| SF36 Physical Component Score (PCS)- baseline* | 39.30±11.73 (12.61 - 64.71) |
| SF36 Mental Component Score (MCS) - baseline* | 47.88±11.94 (7.07 - 68.49) |
|
Health Behaviors
|
|
| Smoking Exposure | |
| Never smoked | 64.0 |
| Up to 10 pack-years | 19.4 |
| 10 or More Pack-years | 16.6 |
| Body Mass Index* | 27.12±7.08 (14.68 - 61.74) |
|
Health Care Characteristics
|
|
| Specialty of Physicians Seen in Year Prior to Interview | |
| Rheumatologist and Generalist | 72.4 |
| Rheumatologist, but No Generalist | 14.7 |
| Generalist, but No Rheumatologist | 11.0 |
| Other Specialties Only | 1.9 |
| In HMO | 31.1 |
| Quality Indicator Pass Rate of 85 or Greater | 24.2 |
| Rating of Interactions with Providers | |
| Patient-Provider Communication* | 90±12.84 (9-100) |
| Shared Decision-making* | 45.04±30.76 (0-100) |
| Trust* | 89.12±17.23 (0-100) |
| Rating of Interactions with Health Plans | |
| Care Coordination* | 77.89±29.53 (0-100) |
| Promptness/Timeliness of Care* | 73.32±24.25 (0-100) |
| Assessment of Health Plan* | 81.20±17.66 (0-100) |
*
Mean ± standard deviation and range