Table 2.
Table of Measures
| Variable | Measure | Description of Measure | Cronbach's Alpha | |||
|---|---|---|---|---|---|---|
| BMT recipient | Partner | Children | ||||
| Contextual Factors | ||||||
| Socio-demographics and Illness Factors | Demographic Questionnaire | Items included socio-demographic information (family participants' ages, gender, race, education), marital status of the patient and caregiver, family annual income, and the patient's illness information (diagnosis, type of transplant). Data obtained at Time 1 from BMT recipient and/or partner. | X | X | ||
| Stress Response | ||||||
| Emotional Status | The Positive and Negative Affect Schedule (PANAS): Negative Affect Subscale Watson, Clark, & Tellegen, 1988 (Ref.11) | 10 items - Negative affect as an indicator of parent distress. Participants rate how often they have experienced specific negative emotions (upset, sadness, scared, nervous) over the past two weeks prior to data collection. Ranked on a 5-point Likert scale with item responses ranging from “very slightly/not at all” to “extremely”. | X | X | .88 | |
| The Child Health Questionnaire (CHQ-CF87): Mental Health Subscale Landgraf, Abetz, & Ware, 1996 (Ref.12) | 16 items pertaining to feelings: happy, sad, scared, lonely over the previous two weeks prior to data collection. Participants rated the frequency of these on a 5-point scale, with item responses ranging from “none of the time” to “all of the time”. | X | .82 | |||
| Individual Coping | ||||||
| Avoidance Coping | Ways of Coping Checklist Avoidance Subscale Lazarus & Folkman, 1984 (Ref.13) | 8 item subscale assessing the use of avoidance coping from a modified version of the Ways of Coping Checklist. Items included the frequency of the use of avoiding others, wishful thinking, distraction. Responses were ranked on a 5-point scale by the participant to indicate the frequency of use (“never” to “very often”) of each behavior over the previous two weeks. | X | X | .83 | |
| Response to Stress Questionnaire (RSQ): Disengagement Subscale Connor-Smith, J., Compas, B. Wadsworth, M. Thomson, A. & Salzman, H. 2000 (Ref.14) | Nine item subscale asking children to rank the frequency of their use of disengagement coping behaviors (denial, avoidance, wishful thinking) with regard to their own previously identified stress-related aspects of their parent's BMT. Children rated their use on a 4-point scale, ranging from “not at all” to “a lot”. | X | .73 | |||
| Communication | Family Environment Scale (FES): Expressiveness Subscale Moos & Moos, 2002 (Ref. 15) | 9 items pertaining to the participants' perceptions of this construct for the two week time period prior to data collection. Items included: expressing feelings and concerns to one another, family discussion, and disclosure. Statements scored as “True” or “False”. | X | X | X | .69 adults .45 children |
| Adaptation | ||||||
| Family Cohesion | Family Environment Scale (FES) Subscale: Cohesion Moos & Moos, 2002 (Ref.15) | 9 items pertaining to the participants' perceptions of this construct in the family for the two week time period prior to data collection. Items included: togetherness, spirit, getting along, and mutual support. Statements scored as “True” or “False”. | X | X | X | .78 adults .75 children |
| Dyadic Adjustment | The Dyadic Adjustment Scale (DAS) Spanier, 1976 (ref.16) | 32 item scale measures four relational elements: satisfaction, cohesion, consensus, and affectional expression in a marital/committed relationship of the recipient and caregiver/partner. The total score was used. | X | X | .90 | |