Table 3.
Category | Supplier | |||||||
|
Support group/patient organization | Publishing or media company | Other associations and sponsoring bodies | Other | ||||
|
n (%) | Supplier % | n (%) | Supplier % | n (%) | Supplier % | n (%) | Supplier % |
Medication, curative means, and aids | 148 (41.2) | 55.0 | 15 (4.2) | 71.4 | 36 (10.0) | 55.4 | 3 (0.8) | 60.0 |
Information exchange with other patients | 227 (70.9) | 84.4 | 3 (0.9) | 14.3 | 24 (7.5) | 36.9 | 0 (0.0) | 0.0 |
Diagnostics | 193 (37.3) | 71.8 | 20 (3.9) | 95.2 | 42 (8.1) | 64.6 | 4 (0.8) | 80.0 |
Research | 76 (29.9) | 28.3 | 4 (1.6) | 19.1 | 33 (13.0) | 50.8 | 2 (0.8) | 40.0 |
Training and continuededucation | 41 (32.0) | 15.2 | 3 (2.3) | 14.3 | 16 (12.5) | 24.6 | 0 (0.0) | 0.0 |
Assistance for self-help | 223 (64.3) | 82.9 | 4 (1.2) | 19.1 | 29 (8.4) | 44.6 | 1 (0.3) | 20.0 |
Desire to have children/family planning | 51 (54.8) | 19.0 | 5 (5.4) | 23.8 | 6 (6.5) | 9.2 | 0 (0.0) | 0.0 |
Disease pattern/symptoms | 259 (40.9) | 96.3 | 21 (3.3) | 100.0 | 53 (8.4) | 81.5 | 5 (0.8) | 100.0 |
Personal advice | 91 (55.5) | 33.8 | 0 (0.0) | 0.0 | 12 (7.3) | 18.5 | 0 (0.0) | 0.0 |
Psychosocial counseling | 33 (67.4) | 12.3 | 0 (0.0) | 0.0 | 4 (8.2) | 6.2 | 0 (0.0) | 0.0 |
Other therapy options | 108 (34.1) | 40.2 | 14 (4.4) | 66.7 | 24 (7.6) | 36.9 | 4 (1.3) | 80.0 |
Social-legal advice | 54 (62.8) | 20.1 | 0 (0.0) | 0.0 | 9 (10.5) | 13.9 | 0 (0.0) | 0.0 |
Therapeutic guidelines | 37 (36.6) | 13.8 | 7 (6.9) | 33.3 | 10 (9.9) | 15.4 | 0 (0.0) | 0.0 |
Advice from doctors | 9 (7.8) | 3.4 | 3 (2.6) | 14.3 | 14 (12.1) | 21.5 | 1 (0.9) | 20.0 |