TABLE 2.
Characteristics of the international primary ciliary dyskinesia cohort (iPCD Cohort)
| Country | Principal investigator | Patients n | Age range years# | Males % | Type of data delivered | Data richness¶ |
| Argentina | S. Scigliano | 101 | 6–57 | 42 | Cross-sectional | Intermediate |
| Australia | L. Morgan | 109 | 0–76 | 60 | Longitudinal | High |
| Belgium | M. Boon | 82 | 0–69 | 45 | Cross-sectional | High |
| Cyprus | P. Yiallouros | 31 | 0–66 | 48 | Longitudinal | High |
| Denmark | K.G. Nielsen | 120 | 0–70 | 48 | Longitudinal | Intermediate |
| France | A. Clement | 337 | 0–69 | 52 | Longitudinal | High |
| Germany (Bochum) | C. Koerner-Rettberg | 64 | 0–27 | 40 | Cross-sectional | High |
| Germany (Muenster) | H. Omran | 436 | 3–75 | 52 | Cross-sectional | Basic |
| Germany (Hannover) | N. Schwerk | 37 | 0–39 | 68 | Longitudinal | High |
| Israel | I. Amirav | 210 | 0–60 | 56 | Cross-sectional | High |
| Italy | Italian PCD group | 331 | 0–73 | 50 | Cross-sectional | Intermediate |
| The Netherlands | E. Haarman | 82 | 3–69 | 50 | Longitudinal | Intermediate |
| Norway | S. Crowley | 23 | 0–18 | 65 | Longitudinal | High |
| Poland | H. Mazurek | 105 | 1–22 | 56 | Cross-sectional | High |
| Serbia | Z. Zivkovic | 10 | 6–19 | 45 | Longitudinal | High |
| Switzerland | Swiss PCD group | 108 | 3–70 | 51 | Longitudinal | High |
| Turkey | B. Karadag | 37 | 3–21 | 43 | Cross-sectional | Intermediate |
| UK (Paediatric Pulmonology Dept, Brompton) | C. Hogg | 116 | 1–18 | 47 | Cross-sectional | Basic |
| UK (Adult Pulmonology Dept, Brompton) | M. Loebinger | 152 | 20–76 | 38 | Cross-sectional | Basic |
| UK (Southampton) | J. Lucas | 104 | 0–68 | 49 | Longitudinal | Intermediate |
| USA/Canada | Genetic Diseases of Mucociliary Clearance Consortium | 418 | 0–77 | 44 | Cross-sectional | Basic |
| iPCD Cohort | 3013 | 0–77 | 50 |
#: at time of data delivery; ¶: semiquantitative measure based on the number of delivered variables.