TABLE 3.
Available data from different modules of the standardised dataset of 3013 primary ciliary dyskinesia (PCD) patients in the international PCD cohort (iPCD Cohort) (April 2016)
| Type of data | Patients |
| General information | 3013 (100) |
| Diagnostics | 3013 (100) |
| nNO | 1021 (33) |
| TEM | 1913 (62) |
| VM | 1088 (35) |
| Genetics | 276 (9) |
| Baseline characteristics# | 2286 (74) |
| Growth | 1609 (53) |
| Lung function | 1042 (34) |
| Clinical manifestations | 1352 (44) |
| Therapy | 843 (27) |
| Microbiology | 732 (24) |
| Imaging | 526 (17) |
| Neonatal period | 1179 (38) |
Data are presented as n (%). nNO: nasal nitric oxide; TEM: transmission electron microscopy; VM: light or high-frequency video microscopy. #: mainly data on situs anomalies and congenital heart disease.