Table 1. Topic guide used to maintain focus group discussions.

Topic guide
1. Could you introduce yourself and describe the way of your disease?
2. Which PSS-related problems do you experience and which parts of the body are involved? (e.g. Dryness of eyes, mouth, nose, vagina, skin? Side-effects of medication? Limitation through treatment?)
3. Do you experience any difficulties in your activities of daily living? (e.g. which kind of work? Sick leave? Household, hobbies and leisure activities?)
4. Do you experience any limitations in your social environment? (e.g. impairment of social contacts? Support from family/friends?)