Table 5.

Frequencies of Provider and Parent Facilitation and Child Involvement by Condition Cohort

Cohort	Provider Facilitate N (%)	Parent Facilitate N (%)	Child Involvement N (%)
Neurodevelopmental disorder (n = 7)	3 (43%)	3 (43%)	4 (57%)
Non-syndromic hearing loss (n = 6)	2 (33%)	0	2 (33%)
Cardiac arrhythmia/cardiomyopathy (n = 22)	21 (95%)	11 (50%)	16 (73%)
Platelet function disorder (n = 4)	3 (75%)	3 (75%)	2 (50%)
Nuclear encoded mitochondrial disease (n = 5)	3 (60%)	2 (40%)	3 (60%)

Note: Values indicate number and percentage of consent discussions from that condition cohort in which the behavior was present