Table 1.

Reasons given for filtering genomic results or for not wanting to receive certain results

Proposed Reason	Participant Information	Quote
Prevent information overload	21yo Male	“I believe in the doctors but I think that sometimes we have too much information. I think that medical and technology has gone too far… So I think that it should just be kept really simple.”
Desire not to know the future	68yo Male	“You go through life with a lot of expectations that you may not want to really know what lies in your future. Sometimes people wanna keep it as a surprise.”
Concerns about quality of information	42yo Female	“I like how [participant] talked about the reliability. That is a fear. Whether it is.”
Religious beliefs	47yo Male	“I know a lot of people who consider themselves very… religious… They believe it’s God’s way and that’s the way it is and man cannot change it and these tests are just interference if you will, in their beliefs.”
Risk for workplace discrimination	23yo Female	“This person has a certain genetic predisposition for her to suffer from cancer in 2 years, and therefore she may suffer from a certain type of discrimination in the future, in the workplace or X situation.”
Risk for psychological harm	61yo Female	“There are so many variables in people’s psychological makeups that to hear this kind of news no matter whether you ask for it or not. Sometimes you don’t even know whether you’ll be prepared.”
Risk for adverse effect on insurance coverage	58yo Male	“Obama’s healthcare plan finding out about it and then jacking your rates up or dropping you.”
Risk for revealing sensitive information to unauthorized persons	58yo Male	“The reason I disagree is… one of the pharmacy techs is a friend of my daughter’s… I don’t want that girl looking at my records and then saying ‘Gee, [daughter]’s dad is getting ready to drop dead.”