Table 2.
Demographic and health-related data of 91 participants.
| All participants - proxy reports | Self-reported participants | |||||
|---|---|---|---|---|---|---|
| Children (8-12 y) N 43 (47.3%) |
Adolesc. (13-17 y) N 48 (52.7%) |
All N 91 |
Children (8-12 y) N 26 (54.2%) |
Adolesc. (13-17 y) N 22 (45.8%) |
All N 48 |
|
| Age (mean) | 10 y 6 mo, SD 1.2 |
14 y, SD 0.9 |
12 y 4 mo, SD 2.02 |
10 y 8 mo, SD 1.1 |
13 y 11mo, SD 0.8 |
12 y 2 mo, SD 1.9 |
| Gender | ||||||
| male | 26 (23.3%) | 27 (56.3%) | 53 (58.2%) | 13 (50.0%) | 10 (45.5%) | 23 (47.9%) |
| female | 17 (39.5%) | 21 (43.8%) | 38 (41.8%) | 13 (50.0%) | 12 (54.5%) | 25 (52.1%) |
| CP classification | ||||||
| spastic | 35 (81.4%) uni 14 (33%) |
43 (89.6%) uni 11 (23%) |
78 (85.7%) uni 25 (27%) |
24 (92.3%) uni 13 (50%) |
22 (100%) uni 7 (32%) |
46 (95.8%) uni 20 (42%) |
| dyskinetic dystonia | 7 (16.3%) | 4 (8.3%) | 11 (12.1%) | 2 (7.6%) | / | 2 (4.2%) |
| dys.choreoathetosis | / | 1 (2.1%) | 1 (1.1%) | / | / | / |
| ataxic | 1 (2.3%) | / | 1 (1.1%) | / | / | / |
| GMFCS | ||||||
| I | 18 (41.9%) | 11 (22.9%) | 29 (31.9%) | 16 (61.5%) | 8 (36.4%) | 24 (50%) |
| II | 10 (23.2%) | 10 (20.8%) | 20 (22.0%) | 7 (26.9%) | 7 (31.8%) | 14 (29.2%) |
| III | 3 (7.0%) | 8 (16.7%) | 11 (12.1%) | 1 (3.8%) | 4 (18.2%) | 5 (10.4%) |
| IV | 7 (16.3%) | 8 (16.7%) | 15 (16.5%) | 2 (7.7%) | 3 (13.6%) | 5 (10.4%) |
| V | 5 (11.6%) | 11 (22.9%) | 16 (17.6%) | / | / | / |
| IQ | ||||||
| > 70 | 25 (58.1%) | 21 (43.8%) | 48 (52.7%) | 26 (100%) | 22 (100%) | 48 (100%) |
| 50-70 | 7 (16.3%) | 10 (20.8%) | 15 (16.5%) | / | / | / |
| 20-50 | 7 (16.3%) | 11 (22.9%) | 18 (19.8%) | / | / | / |
| < 20 | 4 (9.3%) | 6 (12.5%) | 10 (11.0%) | / | / | / |
| Epilepsy | 15 (34.9%) | 17 (35.4%) | 32 (35.2%) | 3 (11.5%) | 3 (13.6%) | 6 (12.5%) |
| Speech disorder | 19 (44.2%) | 22 (45.8%) | 41 (45.1%) | 7 (26.9%) | 6 (27.3%) | 13 (27.1%) |
| Attention disorder | 14 (32.6%) | 11 (22.9%) | 25 (27.5%) | 10 (38.5%) | 5 (22.7%) | 15 (31.3%) |
| Visual impairment | 15 (34.9%) | 19 (39.6%) | 34 (37.4%) | 7 (26.9%) | 9 (40.9%) | 16 (33.3%) |
| - severe | 2 (4.7%) | 2 (4.2%) | 4 (4.4%) | 1 (3.8%) | / | 1 (2.1%) |
| Hearing impairment | 4 (9.3%) | 3 (6.3%) | 7 (7.7%) | 1 (3.8%) | 1 (4.5%) | 2 (4.2%) |
| - severe | 2 (4.7%) | 1 (2.1%) | 3 (3.3%) | 1 (3.8%) | 1 (4.5%) | 2 (4.2%) |
| Reporting pain | 7 (16.3%) | 14 (29.2%) | 21 (23.1%) | 2 (7.7%) | 5 (22.7%) | 7 (14.6%) |
| Disrupted sleep | 8 (18.6%) | 12 (25.0%) | 20 (22.0%) | 2 (7.7%) | 1 (4.5%) | 3 (6.3%) |
| Gastrostomy | 1 (2.3%) | / | 1 (1.1%) | / | / | / |
| Reduced bone density | 4 (9.3%) | 5 (10.4%) | 9 (10.0%) | / | / | / |
Abbreviations: the number of cases (N); years (y); months (mo); unilateral (uni); Gross Motor Function Classification Scale (GMFCS); intelligence quotient (IQ)