Table 2.

Patient- and caregiver-reported outcome measures.

Outcome	Participant	Measure	Description
Quality of Life Primary Outcome	Patient	FACIT-PAL Functional Assessment of Chronic Illness Therapy -- Palliative Care	Measures physical, social, emotional, & functional well-being with a palliative care subscale developed to identify quality of life concerns for patients with advanced cancer [31-33]
Symptom Burden	Patient	ESAS Edmonton Symptom Assessment Scale	Patient-rated symptom scale developed & validated in cancer patients receiving palliative care [27, 28, 34]
Self-efficacy	Patient	Cancer Behavior Inventory-Brief version	Measures self-efficacy for coping with cancer [35]
Patient-oncologist Relationship	Patient	Human Connection Scale	Measures therapeutic alliance between patients with advanced cancer and their physicians [36]
Distress	Patient	NCCN Distress Thermometer	Measures distress in patients with cancer on a 0-10 scale [29]
Hope	Patient and Caregiver	Herth Hope Index	Abbreviated instrument to assess hope in adults in clinical settings [37]
Mood	Patient and Caregiver	HADS Hospital Anxiety and Depression Scale	Measures symptoms of anxiety & depression, extensively validated for screening emotional distress among advanced cancer patients and family members [38-41]
Caregiver Burden	Caregiver	Zarit Burden Interview – Short version	Self-report of burden experienced while providing care to a loved one, shorter version of widely used measure [42]
Self-efficacy	Caregiver	Caregiver Inventory	A measure of self-efficacy for caregivers; includes assessment of self-care and communication [43]
Satisfaction	Caregiver	FAMCARE-2	Measures family caregiver satisfaction with care in a variety of palliative care settings [44, 45]