Table 2.
Patient and parent survey participant demographics. A total of 10 patients and 15 parents completed the survey. Patient and parent pairs have matching ID numbers. T=Patient, P=Parent, E=Egleston, SR=Scottish Rite
| P ID | P Sex | P Age | P Srvy | T ID | T Sex | T Age | T Srvy | Primary Diagnosis (stage) | Site |
|---|---|---|---|---|---|---|---|---|---|
| P3 | M | 43 | Y | T3 | M | 14 | Y | Osteosarcoma (metastatic) | E |
| P4 | F | 48 | Y | T4 | F | 15 | N | Osteosarcoma (neoadjuvant chemo) | E |
| P5 | F | 37 | Y | T5 | F | 16 | Y | Alveolar soft-part sarcoma (metastatic) | E |
| P6 | F | 37 | Y | T6 | F | 17 | N | Clear cell sarcoma (stage 4 metastatic) | E |
| P7 | F | 34 | Y | T7 | F | 15 | Y | Osteosarcoma (remission) | E |
| P8 | M | 52 | Y | T8 | M | 17 | N | Metastatic testicular germ cell (remission) | E |
| P11 | F | 38 | Y | T11 | F | 16 | Y | Juvenile granulosa cell tumor (remission) | SR |
| P12 | F | 36 | Y | T12 | M | 16 | Y | Germ cell tumor | E |
| P13 | F | 49 | Y | T13 | F | 15 | Y | Idiopathic thrombocyptopenic purpura | SR |
| P14 | F | 47 | N | T14 | F | 13 | Y | Sickle cell disease | SR |
| P15 | F | 50 | Y | T15 | F | 14 | Y | Osteosarcoma (stage 2) | E |
| P17 | F | 32 | Y | T17 | M | 17 | N | Malignant fibrous histeocyoma (remission) | E |
| P19 | F | 52 | Y | T19 | F | 15 | N | Von Willebrand disease | SR |
| P20 | F | 56 | Y | T20 | M | 15 | Y | Liver sarcoma (remission) | SR |
| P21 | M | 41 | Y | T21 | M | 14 | Y | Sickle cell disease | E |
| P23 | F | 41 | Y | T23 | F | 17 | Y | Wegener’s granulomatosis | E |