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. 2017 Feb 2;2:7. [Version 1] doi: 10.12688/wellcomeopenres.10722.1

Table 1. Ten categories of end of life interventions.

Focus Definition Examples
1 Policy Decisions taken or rules adopted by governing
authorities to deliver, facilitate, monitor or regulate
end of life issues.
Strategies, regulatory and monitoring frameworks
for end of life care, resource allocation protocols,
standards, and guidelines.
2 Advocacy Expressions or actions on end of life issues that
aim to influence decisions of the institutional
elite and/or promote the interests of specific
populations, groups or individuals in particular
contexts.
Calls for legalisation of medical aid in dying, assisted
suicide, or euthanasia, concerns about inadequate
access to pain medication or hospice and palliative
care, ‘Declarations’ of various kinds on end of life
issues.
3 Educational Development of knowledge, skills, good judgment
and character required for the delivery of
appropriate end of life care
Educational resources and programmes extending
from professional audiences to lay, family and informal
carers and wider publics and interest groups.
4 Ethico-legal Frameworks included within laws, guidelines or
ethical codes that relate to issues at the end of
life and which permit, facilitate or require specific
courses of action.
Laws on with-holding or withdrawing treatment,
assisted dying, euthanasia, suicide or the provision
of pain relief and palliative care, professional
requirements and standards about these issues.
5 Service Medical, nursing and other services for the
prevention, alleviation and/or reduction of suffering
at the end of life through inpatient, outpatient,
home care or other forms of services
Palliative care, hospice, pain and bereavement
services, provision for housing with care, institutional
and community based, public, private, non-profit.
6 Clinical Medical, nursing, allied health and psycho-social
procedures at the individual level to relieve
symptoms and sufferings associated with
advanced illnesses and when death is imminent
Procedures for pain relief, symptom management,
care planning, bereavement care, for adults and
children.
7 Research Systematic enquiry on end of life issues for
the purposes of establishing new knowledge
and understanding by description, prediction,
improvement and/or explanation
Studies in many disciplines and methodologies
intended to illuminate, evaluate or re-define end of life
issues.
8 Cultural Initiatives taken to influence patterns of shared
knowledge and symbolic meanings in particular
communities, through which people perceive,
interpret, express and respond to end of life issues
Designated ‘days’ relating to end of life issues, death
cafes, salons, works of art, literature, film, poetry on
end of life issues.
9 Intangible Actions to promote the recognition and
significance of aspects of human existence that
have intrinsic value at the end of life
Spiritual care, therapies to promote dignity and
compassion, to enhance the meaning of suffering,
provide mutual support.
10 Self-
determined
Actions, decisions or choices made by individuals
to engage in or refrain from something that has
implications for them at the end of their life or the
life of another
Voluntary refusal of life prolonging procedures,
treatment, food and fluids, ‘rational suicide’, self-care
and support.