Table 1. Comparison of perspectives of clinical and consumer experts with the final patient focus group script elements, organized by general domains of queries.

Clinical experts	Patient Experts	Final elements
Domain: Symptoms	Domain: Symptoms	Integrated Domain: Triggers (Symptoms) that lead to patients seeking care
How do your urinary symptoms usually start. How do you describe, in terms of personal experience, acute UTI? At what point do you contact your care provider be contacted?	How did your symptoms start? Is this how they usually start or was it different? Do you notice any patterns? Does your bowel program affect your bladder program? At what point did you contact your care provider? (If you contacted your care provider)	What were your first symptoms? Later symptoms? Was this sequence of symptoms usual for you? Do you notice any patterns? At what point did you contact your care provider? (If you contacted your care provider) Does your decision to contact your care provider differ for different episodes of urinary symptoms?
Domain: Symptoms	Domain: Symptoms	Integrated Domain: Symptoms
What UTI symptoms do you experience? Some common symptoms are: fever incontinence abdominal pain or burning cloudy appearance of urine blood in urine (pink urine) strong-smelling urine pelvic pain rectal pain low back pain increased spasticity autonomic dysreflexia.	Some common symptoms that may or may not mean people are getting/have a UTI: feeling unwell fever incontinence abdominal pain or burning cloudy appearance of urine blood in urine (pink urine) strong-smelling urine pelvic pain rectal pain low back pain increased spasticity autonomic dysreflexia urgency bladder spasms change in “regular” symptoms for people who always have some signs that, for them, don’t signal UTI different-from-normal sensation in some persons who use catheters other	Did we miss any symptoms that you experience? Identify Your Top 3: feeling unwell fever Incontinence/bladder spasms abdominal pain or burning ‘cloudy’ urine blood in urine (pink urine) strong-smelling urine pelvic pain rectal pain low back pain increased spasticity autonomic dysreflexia urgency change in “regular” symptoms that don’t always signal a UTI different-from-normal sensation other symptoms
Domain: Bladder management techniques	Domain: Bladder management techniques	Integrated Domain: Bladder Emptying Routine History
Do you have experience with UTIs and two or more different approaches to managing the bladder? Are there issues with managing UTI, facilitators or barriers, which you associate with different bladder management techniques? Have you changed your bladder management technique as time has gone on? How has your technique has evolved and why? How happy are you with what you are currently doing to manage UTI?	Do you empty your bladder through stoma or surgical opening? Do you use a single catheter once or multiple times? Do you tape the catheter in place for overnight? Do you ever clean the area prior to cathing? Does cathing empty the bladder and is there anything you must do to ensure the bladder gets emptied? If you have a cathing schedule, have you ever changed the frequency of cathing, such as from 3 to 2 hours?	What instruments and procedures do you use to empty your bladder? For example– Through a surgical opening (stoma) or urethra? Single use or cleansed and reused catheter? Schedule for emptying—Do you ever vary it? When? How do you make sure the bladder empties completely? Do you have a special procedure for nighttime while sleeping?
Domain: Who treats your UTIs?	Domain: Dealing with Urinary Symptoms	Integrated Domain: Prescribed, preventative strategies and history
Where do you go to get treatment for UTIs. For example, do you see your primary care physician, rrologist, or another specialist (ex. SCI doctor/physiatrist) to manage your UTIs? How many UTIs have you experienced in the last year that required antibiotics?	If you have an ongoing plan, was it self-initiated or prescribed by a healthcare provider? If so, what is that plan and with which provider is it established? PCP? Urologist? Physiatrist? Other? Why and when do you seek treatment from a provider? How do you determine which provider?	Do you have an on-going, preventive, bladder management plan? If so, what is it like? Did you initiate it or did your provider? Why and when do you seek treatment from a provider? How do you determine which provider? What has worked in the past but no longer works? When did this change occur? How many diagnosed UTIs have you had in the last year that required antibiotics? How was it diagnosed (e.g. presumptive, urinalysis, culture)? How does your bowel program affect your bladder program?
Domain: Treatment for Urinary Symptoms?	Domain: Dealing with Urinary Symptoms	Integrated Domain: Selecting antibiotics and the role they currently play and have played in treatment
How do you interact with your provider regarding taking antibiotics? How do you feel about taking them? How has your prescribed course changed over the years you have been managing UTI? Do you feel you experience any health changes related to taking antibiotics? How do you typically get your prescription? How do you typically work with your provider to monitor the progress of treatment? Do you maintain your own supply of antibiotics at home?	Do you get the opportunity to weigh in on the antibiotic prescribed? Do you take antibiotics that were not prescribed by a provider for the instance they are being taken? Do you take antibiotics prophylactically? If so, when? Do you have certain antibiotics you try to avoid? If so, which ones? What has worked in the past but no longer works? When did this change occur? At what point is the prescription given, when you are first seen or after the culture is resulted?	About your use of antibiotics… Are you given a prescription when you are first seen or after the culture results are known? Do you get the opportunity to help select the antibiotic prescribed? Do you take antibiotics that were prescribed by a provider for an earlier episode? Do you have a standing prescription from your provider for antibiotics? Do you take antibiotics prophylactically? If so, when? Do you have certain antibiotics you try to avoid? If so, which ones?
Domain: Non-prescription strategies to decrease risk of UTI	Domain: Non-prescription strategies to manage urinary symptoms	Integrated Domain: Non-prescribed, preventative strategies and history
Do you ever use non-prescription strategies prior to an antibiotic when you experience UTI symptoms? Do you ever use non-prescription and prescription strategies together? Have you shared your interest in/use of non-prescription strategies with your care provider? Where did you learn about non-prescription strategies?	Do you ever use non-prescription strategies prior to prescription medications when you experience urinary symptoms? Do you ever use non-prescription and prescription strategies together? Do you use frequency of fluid intake and bladder emptying (e.g. every 3 hours)? Do you make a point to avoid certain types of fluids or foods to reduce UTIs? Have you had experience with UTIs that did not require antibiotics? Did they go away on their own? Have you ever shared your interest in/use of non-prescription strategies with your care provider? Where did you learn about non-prescription strategies?	Have you developed routines on your own to curtail urinary symptoms? Have you tried any non-prescription strategies to manage urinary symptoms? For example … cranberry juice cranberry pills d-mannose probiotics increased fluid intake other strategies?
Domain: Impact of UTIs on community participation and/or quality of life	Domain: Impact of urinary symptoms on community participation and/or quality of life	Integrated Domain: Impact of symptoms and treatment of symptoms on patient’s life
How do UTIs influence your life? Do you engage in planning that you might not do if you didn’t experience chronic UTIs? Do you refrain from certain activities because of UTI?	Does antibiotic therapy cause disruptions to your daily routine or diet? Does it require special planning? Do you feel that urinary symptoms affect your planning (by increasing or decreasing the need to plan your schedule or other activities)? Do you refrain from certain activities or from planning activities in general because of urinary symptoms? Has fear of accidents, embarrassment due to odor, impacted how you participate in the community?	Increased need for planning Decision to not participate Embarrassment/fear of odor, accidents, etc. Other ways
Domain: Insurance	Domain: Access to care & Financial Constraints	Integrated Domain: Logistics in attaining care
Has insurance coverage influenced your bladder management approach? If yes, please describe how.	Do issues related to insurance or the process required to get attention from the medical community affect when you seek treatment? Has insurance coverage influenced your being able to use a catheter once each time you need it? Does the cost of culture and medication to treat UTI influence your care-seeking pattern? Is transportation, travel, and other logistics of getting to see a provider a factor in your decision to seek diagnosis/treatment? Is your first thought to self-treat, use a “home remedy” even if you HAVE insurance?	What factors (finances, time, travel, medication effects, etc.) determine whether or not you see a doctor when you have urinary symptoms? For example: What insurance covers and doesn’t cover Getting time off from work/school Negative impact from getting treatment, for example, diarrhea History of reflux (hydronephrosis) Others?