Table 2.

Parent respondents' common concerns for initial disclosure to their child

Child will feel different/it will affect his or her self-esteem

How the child will react

Discussing infertility (parents of boys with XXY, XXYY, XXXXY)

What to say, words to use, and making conversation age-appropriate

The child will not understand

The parent's emotions will interfere with the conversation

Privacy concerns/the child will face discrimination

The child will use the disorder as an excuse

When is the right time for diagnosis disclosure?

Discussing medical problems the child has/may have