Table 2.
Survey participants’ agreement ratings towards participating in practice guideline development, anticipated impacts of participating, and methods of participating (n = 21)
| Item | Meana | SD |
|---|---|---|
| Participating | ||
| I think it is important for me, as a patient/survivor/caregiver, to be involved in practice guideline development. | 3.70 | 1.22 |
| I am interested in participating in practice guideline development. | 3.19 | 1.60 |
| I would want to be provided with training to learn more about practice guidelines as well as the development process, prior to participation. | 3.45 | 1.32 |
| Anticipated Impacts | ||
| By participating in practice guideline development, patients/survivors/caregivers can incorporate their values and preferences into the practice guideline development process. | 3.48 | 1.36 |
| By participating in the practice guideline development process, patients/survivors/caregivers can make suggestions for improvements to the development process. | 4.00 | 0.97 |
| By participating in the practice guideline development process, patients/survivors/caregivers may impact the quality of care patients receive. | 4.10 | 1.05 |
| By participating in the practice guideline development process, patients/survivors/caregivers may impact access to care. | 4.05 | 1.05 |
| By participating in the practice guideline development process, patients/survivors/caregivers may impact the number of available care choices/options. | 3.90 | 1.07 |
| By participating in the practice guideline development process, patients/survivors/caregivers may promote information sharing regarding the disease and related treatment options. | 4.14 | 0.79 |
| By participating in the practice guideline development process, patients/survivors/caregivers may gain valuable knowledge about options available for the treatment and management of cancer. | 4.20 | 0.77 |
| Methods of Participation | ||
| Holding a separate meeting for patients/survivors/caregivers to seek their feedback and to incorporate their values and preferences in the practice guideline report | 4.06 | 0.95 |
| Including patients/survivors/caregivers as members of the practice guideline development group, from start to finish | 3.89 | 1.18 |
| Including patients/survivors/caregivers in the review of a draft version of the practice guideline document only | 3.94 | 1.30 |
| Including patients/survivors/caregivers in communication and information sharing (e.g., participating in the distribution of the final practice guideline document, creating patient versions of practice guidelines) | 3.94 | 1.06 |
SD standard deviation
a5-point scale (1 = strongly disagree, 5 = strongly agree)