Table 3.
Survey participants’ perceptions about what information should be in a practice guideline and in what stages of guideline development they should participate
| Importance of Information in Practice Guidelines (n = 21) | Frequency | |||
| Development Stage | Is it important to include the following in a practice guideline report? | Yes | Maybe | No |
| Topic selection | Information regarding how the practice guideline topic was selected | 10 (50.0%) | 7 (35.0%) | 3 (15.0%) |
| Guideline development group | Information about the doctors, nurses and researchers who were part of the practice guideline development group | 10 (50.0%) | 4 (20.0%) | 6 (30.0%) |
| Literature review | Information on the quality of the research that was reviewed and considered | 17 (80.9%) | 1 (4.8%) | 3 (14.3%) |
| Creating a draft document | Research that supports the various recommendation options considered in the draft practice guideline document | 18 (85.7%) | 0 (0.0%) | 3 (14.3%) |
| Information about benefits and harms of the treatment options considered | 20 (95.2%) | 0 (0.0%) | 1 (4.8%) | |
| Internal and external review | Information about who was involved in the review of the draft practice guideline document | 11 (52.4%) | 4 (19.0%) | 6 (28.6%) |
| Creating a final document | A summary of how the practice guideline development group made their decisions and reached their final recommendations | 14 (66.7%) | 5 (23.8%) | 2 (9.5%) |
| Participation in Stages of Practice Guideline Development (n = 17)a | Frequency | |||
| Development Stage | Is it important for patients to participate in the following stages of practice guideline development? | Yes | Maybe | No |
| Topic selection | The selection of the practice guideline topic | 12 (70.6%) | 4 (23.5%) | 1 (5.9%) |
| Literature review | The collection of research to inform the practice guideline topic | 8 (47.1%) | 6 (35.3%) | 3 (17.6%) |
| Creating a draft document | The development of a practice guideline draft document and its recommendations | 7 (41.2%) | 6 (35.3%) | 4 (23.5%) |
| Internal and external review | The review of a draft practice guideline document and its recommendations | 10 (58.8%) | 5 (29.4%) | 2 (11.8%) |
| Creating a final document | Making changes to a practice guideline draft document based on feedback from the expert review | 13 (76.5%) | 3 (17.6%) | 1 (5.9%) |
| The creation of a patient/survivor/caregiver version of the final practice guideline document and its recommendations | 16 (94.1%) | 1 (5.9%) | 0 (0.0%) | |
aFour survey respondents indicated that they did not think it is important for patients/ survivors/ caregivers to participate in practice guideline development and therefore did not respond to the “Participation in the Various Stages of Practice Guideline Development” questions above