Table 2.
Individual Priority Selections of Level in Research Categories and Markers Allocated
| Priority | Selected, n (%) | Selected Levela | Markers | |||
|---|---|---|---|---|---|---|
| 1, n (%) | 2, n (%) | 3, n (%) | Markers Needed to Select [Level 1, 2, 3] | Spent per Person | ||
| Round 1 (N = 182) | ||||||
| Causes of Disease | 160 (87.9) | 39 (24.4) | 43 (26.9) | 78 (48.8) | [2, 3, 4] | 2.9 |
| New Approaches | 138 (75.8) | 46 (33.3) | 43 (31.2) | 49 (35.5) | [4, 6, 8] | 4.6 |
| Promote Health | 155 (85.2) | 38 (24.5) | 65 (41.9) | 52 (33.6) | [2, 3, 5] | 2.9 |
| Compare Approaches | 91 (50.0) | 51 (56.0) | 26 (28.6) | 14 (15.4) | [7, 11, 13] | 4.5 |
| Patient‐Doctor | 159 (87.4) | 80 (50.3) | 50 (31.5) | 29 (18.2) | [6, 9, 11] | 7.3 |
| Quality of Life | 154 (84.6) | 49 (31.8) | 44 (28.6) | 61 (39.6) | [3, 4, 6] | 3.8 |
| Health Inequity | 141 (77.5) | 46 (32.6) | 48 (34.0) | 47 (33.3) | [3, 4, 6] | 3.9 |
| Multiple Conditions | 140 (76.9) | 35 (25.0) | 41 (29.3) | 64 (45.7) | [2, 3, 4] | 2.5 |
| Special Needs | 141 (77.5) | 38 (27.0) | 46 (32.6) | 57 (40.4) | [2, 3, 4] | 2.4 |
| Families/Caregivers | 124 (68.1) | 40 (32.3) | 43 (34.7) | 41 (33.1) | [2, 3, 4] | 2.0 |
| Access | 139 (76.4) | 46 (33.1) | 44 (31.7) | 49 (35.3) | [2, 3, 4] | 2.3 |
| Improve Research | 136 (74.7) | 63 (46.3) | 43 (31.6) | 30 (22.1) | [5, 7, 8] | 4.7 |
| Rare Diseases | 125 (68.7) | 54 (43.2) | 43 (34.4) | 28 (22.4) | [2, 3, 4] | 1.9 |
| Round 4 (N = 168) | ||||||
| Causes of Disease | 143 (85.1) | 31 (21.7) | 42 (29.4) | 70 (49.0) | [2, 3, 4] | 2.8 |
| New Approaches | 122 (72.6) | 57 (46.7) | 40 (32.8) | 25 (20.5) | [4, 6, 8] | 4.0 |
| Promote Health | 139 (82.7) | 23 (16.6) | 58 (41.7) | 58 (41.7) | [2, 3, 5] | 3.0 |
| Compare Approaches | 112 (66.7) | 75 (67.0) | 19 (17.0) | 18 (16.1) | [7, 11, 13] | 5.8 |
| Patient‐Doctor | 145 (86.3) | 56 (38.6) | 48 (33.1) | 41 (28.3) | [6, 9, 11] | 7.3 |
| Quality of Life | 144 (85.7) | 44 (30.6) | 54 (37.5) | 46 (31.9) | [3, 4, 6] | 3.7 |
| Health Inequity | 138 (82.1) | 45 (32.6) | 52 (37.7) | 41 (29.7) | [3, 4, 6] | 3.5 |
| Multiple Conditions | 133 (79.2) | 42 (31.6) | 48 (36.1) | 43 (32.3) | [2, 3, 4] | 2.4 |
| Special Needs | 144 (85.7) | 31 (21.5) | 60 (41.7) | 53 (36.8) | [2, 3, 4] | 2.7 |
| Families/Caregivers | 132 (78.6) | 30 (22.7) | 51 (38.6) | 51 (38.6) | [2, 3, 4] | 2.5 |
| Access | 143 (85.1) | 41 (28.7) | 36 (25.2) | 66 (46.2) | [2, 3, 4] | 2.7 |
| Improve Research | 122 (72.6) | 47 (38.5) | 43 (35.3) | 32 (26.2) | [5, 7, 8] | 4.7 |
| Rare Diseases | 124 (73.8) | 46 (37.1) | 44 (35.5) | 34 (27.4) | [2, 3, 4] | 2.1 |
a
Percentages are calculated as individuals choosing the level out of those who selected the priority.