Table 2.

Results of the Survey Disseminated to Patient Members of the PKD Foundation of Canada.

What symptoms bother you the most?

Pain

Fatigue

Enlarged abdomen/bulky organs/bloating

Edema

Hypertension

Side effects of therapy

In your opinion, what should the priorities be for research on ADPKD?

Finding a cure

Finding therapy that will stop/slow disease progression/cyst growth

Finding therapy that could reduce cysts to a manageable size or prevent cyst development

Identifying nonpharmacological therapies that could be used to delay the initiation of pharmacological therapies

Providing better access to transplantation

Improving the longevity of transplants

Finding treatments with improved efficacy and safety

Identifying molecular-based therapies that could correct the gene defect

Identifying modifiable lifestyle factors

Note. ADPKD = autosomal dominant polycystic kidney disease.