Table 1.
Patient and caregiver characteristics at baseline.
| Patient
|
Caregiver
|
|||
|---|---|---|---|---|
| SMI | LDE | SMI | LDE | |
| N = 56 | N = 59 | N = 56 | N = 59 | |
| Demographics | ||||
| Enrollment site | ||||
| Duke University | 24 (42.9) | 28 (47.5) | 24 (42.9) | 28 (47.5) |
| UNC | 1 (1.8) | 1 (1.7) | 1 (1.8) | 1 (1.7) |
| Pittsburgh | 23 (41.1) | 21 (35.6) | 23 (41.1) | 21 (35.6) |
| Nebraska | 8 (14.3) | 9 (15.3) | 8 (14.3) | 9 (15.3) |
| Age, mean in years (SD) | 56.4 (9.9) | 55.6 (10.0) | 55.8 (11.9) | 53.8 (12.1) |
| Gender | ||||
| Male | 33 (58.9) | 37 (62.7) | 15 (26.8) | 15 (25.4) |
| Female | 23 (41.1) | 22 (37.3) | 41 (73.2) | 44 (74.6) |
| Race | ||||
| White, not of Hispanic/Latino ethnicity | 52 (92.9) | 56 (94.9) | 52 (92.9) | 57 (96.6) |
| Other | 4 (7.1) | 3 (5.1) | 4 (7.1) | 2 (3.4) |
| Marital status | ||||
| Single or never married | 5 (8.9) | 4 (6.8) | 8 (14.3) | 6 (10.2) |
| Married | 42 (75.0) | 46 (78.0) | 45 (80.4) | 49 (83.1) |
| Divorced or separated | 8 (14.3) | 5 (8.5) | 2 (3.6) | 3 (5.1) |
| Widowed | 1 (1.8) | 4 (6.8) | 1 (1.8) | 1 (1.7) |
| Highest level of educationa | ||||
| High school graduate/GED or less | 25 (44.6) | 25 (42.4) | 17 (30.9) | 27 (45.8) |
| Greater than high school | 31 (55.4) | 34 (57.6) | 38 (69.1) | 32 (54.2) |
| Relationship to patient | ||||
| Husband or wife | 38 (67.9) | 44 (74.6) | ||
| Son or daughter | 4 (7.1) | 5 (8.5) | ||
| Brother or sister | 6 (10.7) | 1 (1.7) | ||
| Father or mother | 5 (8.9) | 5 (8.5) | ||
| Other | 3 (5.4) | 4 (6.8) | ||
| Clinical Characteristics | ||||
| MELD score, mean (SD) | 15.7 (4.3) | 15.2 (4.2) | ||
| Days on transplant list, median (1st quartile, 3rd quartile) | 423.5 (132.0, 953.0) | 385.0 (108.0, 1312.0) | ||
| Uncertainty & Psychological Well Being, mean (SD) | ||||
| MUIS-A, total score | 86.1 (16.2) | 88.8 (11.5) | ||
| CES-D | 9.9 (6.1) | 9.8 (5.7) | ||
| POMS anxiety subscale, | 4.9 (4.4) | 4.7 (4.4) | ||
| SCS, cognitive reframing subscale | 76.6 (14.2) | 76.4 (16.0) | 78.8 (10.6) | 81.0 (11.0) |
| SCS, problem solving subscale, | 78.0 (15.6) | 78.5 (15.6) | 83.2 (9.7) | 83.3 (12.3) |
| Self-efficacy a | 62.5 (19.2) | 63.7 (18.3) | 63.2 (16.0) | 64.7 (19.0) |
| Fact-G, total score | 72.3 (19.1) | 72.9 (14.6) | ||
| PUS-FM, total score | 85.1 (10.1) | 81.3 (10.3) | ||
| CRA, impact on schedule subscale | 3.1 (0.9) | 3.1 (0.8) | ||
| CRA, caregiver esteem subscale | 4.2 (0.5) | 4.3 (0.5) | ||
| CRA, lack of family support subscale | 2.5 (0.9) | 2.3 (0.8) | ||
| CRA, impact on health subscale | 2.1 (0.6) | 2.2 (0.6) | ||
| CRA, impact on finances subscale | 2.7 (1.0) | 2.6 (0.9) | ||
Note. n (%) unless otherwise indicated. LDE = Liver Disease Education, SMI = Self-management Intervention, UNC = University of North Carolina at Chapel Hill, MELD = Model for End-Stage Liver Disease, CES-D = 10-item Center for Epidemiological Studies Depression Scale, MUIS-A = Mishel Uncertainty in Illness Scale, POMS = Profile of Mood States, SCS = Self-Control Schedule, Fact-G = Quality of Life in Chronic Illness, PUS-FM = Perception of Uncertainty Scale-Family Member, CRA = Caregiver Reaction Assessment.
a
1 caregiver has missing data for education, 1 caregiver has missing data for self-efficacy.