Table 1.
Aim of patient involvement | Process of patient involvement | Impact of patient involvement |
---|---|---|
Preparation for review | Exploring relevance and importance of question with RUG coordinator and feasibility of involving members in research | Potential importance of review question to patients established |
Meeting with RUG coordinator and user support worker to establish exact aims and design of member involvement | Clear aims for and design of RUG involvement established, this facilitated application for funding to support review and patient involvement | |
Refining the scope of the review |
Workshop 1 Discussing relevance of the research question to patients |
Importance of review question to patients established |
Identifying factors important to patients in sharing decisions about prescribing analgesia | Additional factors of importance identified and review protocol & data extraction forms amended to reflect these | |
Interpreting the review preliminary findings |
Workshop 2 Critiquing the results of review |
Reassurance that RUG members raised ideas around relevance of literature that were similar to the researchers' |
Feedback on how well patients' views and priorities had been integrated | Reassurance that patient priorities had been reflected in review process. Categories identified by RUG members were used as a framework for the narrative synthesis | |
Interpreting the review findings |
Workshop 3 Agreeing of final results of review |
Reassurance that patient priorities had been reflected in review process. RUG members highlighted additional factors that were poorly represented in literature |
Disseminating findings and engagement |
Workshop 2&3 Planning how to share results |
Results were targeted at practitioners, as RUG members felt this was most important |
Agreeing dissemination of the results & discussing impact of group's involvement | RUG members and support team participated in dissemination of the review findings | |
Discussing how factors important to patients may be observed in consultations | Next stage of the research informed by patient perspective and priorities |