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. 2016 May 12;20(2):298–308. doi: 10.1111/hex.12458

Table 1.

Process and impact of the patient involvement in the systematic review of factors affecting shared decision making

Aim of patient involvement Process of patient involvement Impact of patient involvement
Preparation for review Exploring relevance and importance of question with RUG coordinator and feasibility of involving members in research Potential importance of review question to patients established
Meeting with RUG coordinator and user support worker to establish exact aims and design of member involvement Clear aims for and design of RUG involvement established, this facilitated application for funding to support review and patient involvement
Refining the scope of the review Workshop 1
Discussing relevance of the research question to patients
Importance of review question to patients established
Identifying factors important to patients in sharing decisions about prescribing analgesia Additional factors of importance identified and review protocol & data extraction forms amended to reflect these
Interpreting the review preliminary findings Workshop 2
Critiquing the results of review
Reassurance that RUG members raised ideas around relevance of literature that were similar to the researchers'
Feedback on how well patients' views and priorities had been integrated Reassurance that patient priorities had been reflected in review process. Categories identified by RUG members were used as a framework for the narrative synthesis
Interpreting the review findings Workshop 3
Agreeing of final results of review
Reassurance that patient priorities had been reflected in review process. RUG members highlighted additional factors that were poorly represented in literature
Disseminating findings and engagement Workshop 2&3
Planning how to share results
Results were targeted at practitioners, as RUG members felt this was most important
Agreeing dissemination of the results & discussing impact of group's involvement RUG members and support team participated in dissemination of the review findings
Discussing how factors important to patients may be observed in consultations Next stage of the research informed by patient perspective and priorities