Table 2.
Patient Attitudes 3 Three Months Following Risk Disclosure
| Attitudes towards genetic risk information in the EHR |
S
S |
CRS
(n=100) (%) |
GRS
(n=103) (%) |
p- val ue |
|---|---|---|---|---|
| My genetic information should be included in my EHR. | 2 | 88 (88) | 92 (89) | 0.6 6 |
|
| ||||
| Incorporating my genetic information into the EHR will enable tailored medical therapy for my unique genetic make-up. |
3 | 89 (89) | 91 (88) | 0.9 3 |
|
| ||||
| Would agree to automated notifications of genetic risk test results to: Siblings |
4 | 52 (52) | 54 (52) | 0.8 8 |
|
| ||||
| Parents | 4 | 35 (35) | 42 (41) | 0.4 0 |
|
| ||||
| Children | 4 | 65 (65) | 64 (62) | 06 5 |
|
| ||||
| Other relatives | 4 | 26 (26) | 27 (26) | 0.9 4 |
|
| ||||
| Would grant medical insurance companies access to genetic test results. | 5 | 23 (23) | 11 (11) | 0.0 8 |
|
| ||||
| Attitudes towards medical personal health information in the EHR | ||||
|
| ||||
| Details of my family history of medical conditions should be included in my EHR. |
1 | 93 (93) | 89 (86) | 0.2 0 |
|
| ||||
| Doctors and other healthcare providers should be able to share your medical information with each other electronically. |
6 | 96 (96) | 102 (99) |
0.1 2 |
|
| ||||
| Safeguards are in place to protect your medical records from being seen by people who aren’t permitted to see them. |
7 | 93 (93) | 98 (95) | 0.5 8 |
|
| ||||
| Never kept information from healthcare provider due to concerns about privacy or security of personal medical record. |
8 | 98 (98) | 100 (97) |
0.4 4 |
|
| ||||
| Not concerned that an unauthorized person would see medical information sent electronically between healthcare providers. |
9 | 49 (49) | 45 (44) | 0.2 5 |
|
| ||||
| In general, I think that the information I give doctors is safely guarded. | 1 0 |
99 (99) | 102 (99) |
0.8 1 |
|
| ||||
| Confident that I have some say in who is allowed to collect, use and share my private medical information. |
1 1 |
95 (95) | 100 (97) |
0.3 8 |
|
| ||||
| Not concerned that an unauthorized person would see medical information sent by fax between healthcare providers. |
1 2 |
39 (39) | 36 (35) | 0.3 9 |
|
| ||||
| Scientists doing research should be able to review my de-identified medical information. |
1 3 |
94 (94) | 100 (97) |
0.0 7 |
|
| ||||
| Important to be able to get one's own medical information electronically. | 1 4 |
90 (90) | 97 (94) | 0.1 9 |
Notes: Survey attitude statements 1 and 4-14 were taken or adapted from the National Cancer Institute’s Health information National Trends (HINTS) Surveys (http://hints.cancer.gov).
Survey statements 2 and 3 were novel, in order to determine participants’ attitudes towards genetic risk information in the EHR. The table reports the numbers and percentages for favorable responses to each statement.
CRS, conventional risk score; EHR, electronic health record; GRS, genetic risk score; genetic risk information, personal genetic risk information; SS, survey statement