TABLE 1.
Demographics
| Variable | Total Sample (N = 400) n (%) |
Children (n = 123) n (%) |
Adults (n = 277) n (%) |
|---|---|---|---|
| Current Age in Years M(SD) | 21.78 (6.82) | 13.68 (2.93) | 25.40 (4.60) |
| Gender | |||
| Male | 213 (53.2) | 68 (55.3) | 145 (52.3) |
| Female | 187 (46.8) | 55 (44.7) | 132 (47.7) |
| Race/Ethnicity | |||
| White | 347 (86.8) | 97 (78.9) | 250 (90.3) |
| African American | 28 (7.0) | 13 (10.6) | 15 (5.4) |
| Hispanic | 10 (2.5) | 6 (4.9) | 4 (1.4) |
| Asian | 4 (1.0) | 1 (0.8) | 3 (1.1) |
| Other | 4 (1.0) | 2 (1.6) | 2 (0.7) |
| Insurance | |||
| Private | 313 (78.3) | 95 (77.2) | 218 (78.8) |
| Public | 57 (14.3) | 19 (15.4) | 39 (14.0) |
| None/Self-Pay | 17 (4.3) | 7 (5.7) | 10 (3.6) |
| BMI Categorya | |||
| Underweight | 44 (11.0) | 5 (4.1) | 39 (14.1) |
| Normal | 193 (48.4) | 62 (50.4) | 131 (47.3) |
| Overweight/ Obese | 151 (37.7) | 55 (44.7) | 96 (34.7) |
| Diagnosis | |||
| ALL | 140 (35.0) | 47 (38.2) | 93 (33.6) |
| Wilms’ | 35 (8.8) | 16 (13.0) | 19 (6.9) |
| Hodgkin Lymphoma | 24 (6.0) | 0 (0.0) | 24 (8.7) |
| Non-Hodgkin Lymphoma | 39 (9.8) | 10 (8.1) | 29 (10.5) |
| Neuroblastoma | 31 (7.8) | 18 (14.6) | 13 (4.7) |
| AML | 19 (4.8) | 5 (4.1) | 14 (5.1) |
| CNS Tumor | 32 (8.0) | 4 (3.3) | 28 (10.1) |
| Ewing’s sarcoma | 14 (3.5) | 1 (0.8) | 13 (4.7) |
| Osteosarcoma | 10 (2.5) | 0 (0.0) | 10 (3.6) |
| Rhabdomyosarcoma | 19 (4.8) | 8 (6.5) | 11 (4.0) |
| Germ cell tumor | 8 (2.0) | 1 (0.8) | 7 (2.5) |
| Other | 29 (7.3) | 13 (11.3) | 16 (5.8) |
| Age at Diagnosis M(SD) | 7.22 (5.74) | 3.05 (2.22) | 9.07 (5.85) |
| Years Off Treatment M(SD) | 13.24 (4.78) | 9.3 (3.1) | 14.9 (4.3) |
| Stem cell transplant | 23 (5.8) | 7 (5.7) | 16 (5.8) |
| History of relapse | 34 (8.5) | 12 (9.8) | 22 (7.9) |
| Distance from clinic in miles | 15.58 | 17.6 | 15.58 |
| (median, range) | (0.00, 368.65) | (2.56, 690.37) | (0.00, 368.65) |
Note.
a
BMI category was determined based on CDC guidelines for children <20 and adults ≥20 years: underweight = <5th percentile for children, <18.5 for adults, normal weight = 5th to 85th percentile for children, 18.5 to 24.9 for adults, and overweight/obese = ≥95th percentile for children; ≥25 for adults.