Table 8.

Data completeness

Scoring	Follow-up time point	Control (N = 4) n (col %)	Intervention (N = 8) n (col %)	Overall (N = 12) n (col %)
NSAA score	Consent	4 (100)	8 (100)	12 (100)
	Baseline	4 (100)	8 (100)	12 (100)
	6 months	2 (100)	8 (100)	10 (100)
FVC absolute	Consent	4 (100)	7 (88)	11 (92)
	Baseline	2 (50)	5 (63)	7 (58)
	6 months	0 (0)	5 (63)	5 (56)
FVC % predicted for height	Consent	2 (50)	4 (50)	6 (50)
	Baseline	2 (50)	5 (63)	7 (58)
	6 months	0 (0)	5 (63)	5 (56)
6-min total distance	Consent	0 (0)	0 (0)	0 (0)
	Baseline	4 (100)	8 (100)	12 (100)
	6 months	1 (100)	8 (100)	9 (100)
CHU utility value	Consent	0 (0)	0 (0)	0 (0)
	Baseline	3 (75)	8 (100)	11 (92)
	6 months	1 (100)	8 (100)	9 (100)
CarerQOL score	Consent	0 (0)	0 (0)	0 (0)
	Baseline	3 (75)	7 (88)	10 (83)
	6 months	1 (100)	7 (88)	8 (89)
CarerQOL happy VAS	Consent	0 (0)	0 (0)	0 (0)
	Baseline	3 (75)	8 (100)	11 (92)
	6 months	1 (100)	8 (100)	9 (100)
ACTIVLIM patient score	Consent	0 (0)	0 (0)	0 (0)
	Baseline	3 (75)	8 (100)	11 (92)
	6 months	1 (100)	8 (100)	9 (100)
ACTIVLIM patient measure	Consent	0 (0)	0 (0)	0 (0)
	Baseline	3 (75)	8 (100)	11 (92)
	6 months	1 (100)	8 (100)	9 (100)