Table 2.
App functions | Supportive quotations (n=14) | Nonsupportive quotations (n=1) |
Information about breast cancer and treatment (based on Dutch guidelines) |
“A very useful overview of information, with links to all relevant websites in one place. I thought that was really helpful.” | “To me the information in the app does not add much to the information that I can find on the Internet or as provided by my doctors.” |
Patient repository for information (eg, audio-recorded consultations) |
“I shared the audio with my parents who could not be present at the consult. It was comforting to know that they heard the information firsthand from the surgeon instead of my own interpretation. At the same time, I heard important things during playback that I had missed during the initial consultation.” “I forgot important things the doctor said and it felt comforting to know that I could listen to the conversation again. From that moment on, I recorded every consult.” “I regretted not recording several important consultations, because the ones I did record I listened to several times.” |
“I can imagine it being helpful to some patients, but I personally do not need to listen to a consult again. I would feel uncomfortable having to ask every doctor if it’s okay to record the conversation.” |
Symptom and feeling registration | “I used the symptom registration function on a daily basis during the first month until 2 weeks after the surgery. It helped me a lot to see the graphical overview of my symptoms on a weekly basis. I stopped using it when I started to feel better and my symptoms did not fluctuate anymore.“ “The app gave me a familiar feeling in a difficult time of continuously changing faces and feelings, and registering my emotions in the app helped me to express feelings that I would have otherwise kept to myself.” |
“I’m a very grounded person. Breast cancer happened to me, but I do not want to think about it daily. I’ve never kept a diary in my life, so I have no desire to start one now.” |
Timeline | “In the timeline, I registered all my appointments. Keeping an overview of ongoing treatments was very difficult with so many different doctors and appointments, but the app helped me to keep that overview, which made me feel in control.” | “I already have a calendar for all my other personal appointments, so I do not need an app for this. I do not feel the need to separate personal appointments from hospital appointments. I’ll just deal with it all at the same time.” |