Table 2.
Unadjusted clinical and utilization characteristics and attitudes and perceptions regarding PD, baseline vs. follow-up (N = 200).
| Baseline N=200 n (%) | Follow-up N=241 n (%) | |||
|---|---|---|---|---|
| Clinical and Utilization Characteristics | ||||
| Had an exit site issue in last 3 months | 13 | 7.3 | 24 | 10.5 |
| Hospitalization in last 3 months | 41 | 20.8 | 36 | 15.1 |
| ED visit in the last 3 months | 52 | 26.1 | 50 | 20.8 |
| Talked with nurse or PD physician by phone in last 3 months | 167 | 86.5 | 196 | 82.7 |
| If yes, satisfaction level | ||||
| Completely unsatisfied*** | 41 | 24.9 | 13 | 6.7 |
| Satisfied | 0 | 0 | 2 | 1.0 |
| Neither satisfied nor unsatisfied | 3 | 1.8 | 3 | 1.6 |
| Satisfied | 29 | 17.6 | 65 | 33.5 |
| Completely satisfied | 92 | 55.8 | 111 | 57.2 |
| If yes, do you feel that the conversation(s) you had with your PD nurse or doctor via the phone prevented you from having to go in and see the PD doctor or nurse in person? | ||||
| Completely disagree | 16 | 9.9 | 10 | 5.1 |
| Disagree | 13 | 8.1 | 16 | 8.2 |
| Neither disagree nor agree | 25 | 15.5 | 43 | 21.9 |
| Agree | 47 | 29.2 | 72 | 36.7 |
| Completely agree* | 60 | 37.3 | 55 | 28.1 |
| Attitudes and Perceptions of ESRD and Care | ||||
| When all is said and done, I am the person who is responsible for managing my health condition. | ||||
| Definitely false | 3 | 1.1 | 1 | 0.42 |
| Mostly false | 4 | 2.0 | 0 | 0 |
| Don’t know | 2 | 1.0 | 1 | 0.42 |
| Mostly true* | 41 | 20.6 | 72 | 30.4 |
| Definitely true | 149 | 74.9 | 163 | 68.8 |
| Taking an active role in my own health care is the most important factor in determining my health and ability to function. | ||||
| Definitely false | 3 | 1.5 | 1 | 0.42 |
| Mostly false | 0 | 0 | 0 | 0 |
| Don’t know | 5 | 2.5 | 3 | 1.3 |
| Mostly true* | 32 | 16.2 | 72 | 30.5 |
| Definitely true* | 157 | 79.7 | 160 | 67.8 |
| Too much of my time I spent dealing with my kidney disease. | ||||
| Definitely false | 23 | 11.7 | 20 | 8.5 |
| Mostly false | 52 | 26.4 | 69 | 29.4 |
| Don’t know | 17 | 8.6 | 34 | 14.5 |
| Mostly true | 80 | 40.6 | 85 | 36.2 |
| Definitely true | 25 | 12.7 | 27 | 11.5 |
| My kidney disease interferes too much with my life. | ||||
| Definitely false | 17 | 8.7 | 19 | 8.1 |
| Mostly false | 68 | 34.7 | 80 | 34.2 |
| Don’t know | 12 | 6.1 | 26 | 11.1 |
| Mostly true | 76 | 38.8 | 83 | 35.5 |
| Definitely true | 23 | 11.7 | 26 | 11.1 |
| I am worried about my health. | ||||
| Definitely false | 18 | 9.1 | 32 | 13.6 |
| Mostly false | 46 | 23.4 | 72 | 30.6 |
| Don’t know | 9 | 4.6 | 23 | 9.8 |
| Mostly true* | 87 | 44.2 | 76 | 32.3 |
| Definitely true | 37 | 18.8 | 32 | 13.6 |
| My family is worried about my health. | ||||
| Definitely false | 8 | 4.1 | 21 | 8.9 |
| Mostly false* | 18 | 9.2 | 37 | 15.6 |
| Don’t know* | 18 | 9.2 | 43 | 18.1 |
| Mostly true* | 100 | 51.3 | 88 | 37.1 |
| Definitely true | 51 | 26.2 | 48 | 20.3 |
| I feel like a burden on my family. | ||||
| Definitely false | 51 | 25.9 | 52 | 21.9 |
| Mostly false | 54 | 27.4 | 81 | 34.0 |
| Don’t know | 28 | 14.2 | 21 | 8.8 |
| Mostly true | 45 | 22.8 | 61 | 25.6 |
| Definitely true | 19 | 9.6 | 23 | 9.7 |
| I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health conditions. | ||||
| Definitely false | 2 | 1.0 | 1 | 0.4 |
| Mostly false | 1 | 0.5 | 1 | 0.4 |
| Don’t know | 11 | 5.6 | 16 | 6.8 |
| Mostly true | 79 | 40.3 | 108 | 46.0 |
| Definitely true | 103 | 52.6 | 109 | 46.4 |
| I am confident that I can follow through on medical treatments I need to do at home. | ||||
| Definitely false | 1 | 0.5 | 0 | 0 |
| Mostly false | 0 | 0 | 2 | 0.9 |
| Don’t know | 1 | 0.5 | 3 | 1.3 |
| Mostly true* | 49 | 24.8 | 79 | 33.5 |
| Definitely true* | 147 | 74.2 | 152 | 64.4 |
| I am confident that I can figure out solutions when new situations or problems arise with my health condition. | ||||
| Definitely false | 1 | 0.5 | 0 | 0 |
| Mostly false | 4 | 2.1 | 0 | 0 |
| Don’t know | 9 | 4.6 | 22 | 9.5 |
| Mostly true | 78 | 40.2 | 105 | 45.5 |
| Definitely true | 102 | 52.6 | 104 | 45.0 |
| In general, how would you rate your health? | ||||
| Excellent | 3 | 1.5 | 5 | 2.1 |
| Very good | 43 | 21.8 | 56 | 23.3 |
| Good | 91 | 46.2 | 115 | 47.9 |
| Fair | 41 | 20.8 | 54 | 22.5 |
| Poor* | 19 | 9.6 | 10 | 4.2 |
| CES-D > 16 | 161 | 82.6 | 184 | 78.6 |
*p<0.05
**p<01
***p<0.001
NB: Missing responses less than 5% for all questions; percentages reflect percentages of valid responses