Table 2.

Responses to stressor items from the Response to Stress Questionnaire (RSQ) adapted for congenital heart disease. ^†

	Not at All/A Little Stressful	Somewhat/Very Stressful
A. Not knowing how my health will be in the future (Future Health)	56.4%	43.6%
B. Concerns about having children or whether my children will be healthy (Children)	71.9%	28.1%
C. Concerns about whether medical procedures may be needed in the future (Future Care)	85.2%	14.8%
D. Paying for healthcare (Cost of Care)	74.5%	25.5%
E. Not being able to do activities that other people my age do (Activities)	60.6%	39.4%
F. Going to the doctor for appointment or tests (Appointments)	84.5%	15.5%
G. Not fully understanding what is wrong with my heart (Understanding)	82.9%	17.1%
H. Having scars on my chest or other visible signs of past medical procedures (Scaring)	59.7%	40.3%
I. Communicating with family, friends, or romantic partners about my health and healthcare (Comm)	81.3%	18.7%
J. Limitations at work or school (Work/School)	84.6%	15.4%
K. Having a device, such as a pacemaker or implantable cardioverter defibrillator (ICD) (Device)	35.5%	64.5%
L. Having to take medications (Medication)	83.0%	17.0%
M. Experiencing sexual difficulties (Sexual Dysfunction)	87.1%	12.9%

^†The percentages reported for items K and L included only those participants who have a device (n = 31) and took medication (n = 112), respectively. For all other items, the sample size ranged from 167–171.