Demographics |
18 |
age, sex, sexual orientation, country of birth, citizenship status, English fluency, Medicare status, partner, household, education |
Positive Health (ph) Cohort [29] |
Physical health |
5 |
prior AIDS, hospitalizations, time in bed / off work due to illness |
Positive Health (ph) Cohort [29] |
Mental health / emotional wellbeing |
22 |
mood, alcohol and illicit drug use |
Patient Health Questionnaire (PHQ-9) [35, 36], Professional Quality of Life Scale (the PROQOL-HIV scale) [37], CAGE [39] questionnaire for alcohol dependence |
Life stressors, social support |
3 |
Events, severity, social network |
The Positive Health (ph) Cohort [29] |
HIV disclosure, stigma |
5 |
Disclosure, stigma, discrimination |
National Association of People With HIV Australia (NAPWHA) HIV Stigma Audit’s Community Survey [34], Professional Quality of Life Scale (the PROQOL-HIV scale)[37] |
Health and treatment perception |
10 |
Attitudes to ART and HIV, adverse events, mood |
Chronic Illness Acceptance Questionnaire [33], Pleasure and Sexual Health (PASH) study [32]; Beliefs About Medications Scales (BMQ-HAART) [31] |
HIV healthcare access, treatment adherence, side effects |
51 |
Current / prior ART and concomitant medications: doses and pills / day, dosing requirements, side effects, adherence to treatments doctors and allied health professional: frequency of attendance, changes to healthcare team, costs of care |
Simplified Medication Adherence Questionnaire (SMAQ) [38], |
Financial and employment status |
10 |
Income, life costs, healthcare costs |
St Vincent’s Immunology B Ambulatory Care’s finance and adherence survey [22] |