Table 1.
Characteristics of informal caregivers and people with dementia
| Study A (n = 198) | Study B (n = 166) | |
|---|---|---|
| Caregiver | ||
| Female sex (%) | 67 | 55 |
| Age, years, mean (SD) | 66.6 (12.9) | 49.5 (14.4) |
| Resides with people with dementia, % | 59 | 17 |
| Duration of informal caregiving, years | Median (IQR) | |
| 0 | 7% | 3 (1–5) |
| 1 | 27% | |
| 2 | 20% | |
| 3 | 18% | |
| 4 | 14% | |
| 5 or more | 15% | |
| Informal care, h/week, median (IQR) | 20 (8–50) | 8 (5–18) |
| Relationship with people with dementia, % | ||
| Spouse or partner | 55 | 7 |
| Child | 37 | 54 |
| Other | 8 | 40 |
| Perseverance time, % | ||
| Less than 1 month | 6 | 10 |
| More than 1 month, less than 6 months | 15 | 11 |
| More than 6 months, less than 1 year | 20 | 13 |
| More than 1 year, less than 2 years | 20 | 13 |
| More than 2 years | 40 | 54 |
| CarerQol-7D tariff, mean (SD) | 70.2 (19.2) | 75.2 (20.4) |
| CarerQol-VAS, mean (SD) | 6.4 (1.8) | 7.0 (1.7) |
| CSI, median (IQR) | 8 (6–10) | 5 (2–7) |
| SRB, mean (SD) | 6.0 (2.2) | 4.8 (2.3) |
| VAS health score, mean (SD) | 7.3 (1.6) | 7.3 (1.7) |
| People with dementia | ||
| Female sex, % | 53 | 73 |
| Age, years, mean (SD) | 81.3 (6.6) | 76.6 (17.0) |
| Health VAS score, mean (SD) | 5.8 (1.9) | 5.4 (2.0) |
CarerQol-7D score ranges from 0 to 100, with higher scores indicating favorable situation; CarerQol-VAS score ranges from 0 to 10, with higher scores indicating favorable situation; CSI scores range from 0 to 18, with lower scores indicating favorable situation; SRB scores range from 0 to 10, with lower scores indicating favorable situation; and VAS health score ranges from 0 to 10, with higher scores indicating a more favorable situation. The category “Other” in relationship includes other family members, friends, neighbors, and acquaintances
Abbreviations: CarerQol Care-related Quality of Life instrument, CSI Caregiver Strain Index, SRB Self-rated Burden scale, VAS Visual analogue scale