Table 2. LSEW participation and participant satisfaction in years 1–3.
| LSEW1 | LSEW2 | LSEW3 | LSEW4 | LSEW5 | |
|---|---|---|---|---|---|
| No. index LS patients invited | 213 | 232 | 284 | 336 | 361 |
| No. participants | 75 | 53 | 74 | 60 | 58 |
| Completed Post-WS (%) | 26 (35 %) | 23 (42 %) | 32 (43 %) | 22 (37 %) | 23 (40 %) |
| Overall organization of workshop | 100 % | 96 % | 100 % | 100 % | 100 % |
| Clarity of information presented | 96 % | 91 % | 88 % | 100 % | 96 % |
| Amount of information presented | 88 % | 91 %+ | 94 % | 100 % | 100 % |
| Clarity of responses during the Q&A session | 88 % | 78 %+ | 88 % | 100 % | 100 % |
| Technicality of information presented | N/A | 87 % | 91 % | 91 % | 91 % |
| Attended previous MSKCC events | N/A | 48 % | 52 % | 82 % | 57 %* |
| Interest in secure online support | N/A | 95 % | 90 % | 82 % | 87 % |
| Interest in patient matched telephone communication | N/A | N/A | 62 % | N/A | N/A |
Data collected from Post Workshop Survey in LSEW years 1–3. % indicates patients that were satisfied or extremely satisfied;
+
Accounts for responses left blank; n = 1 and n = 4 left blank in response to amount of information presented and clarity of responses during Q&A, respectively;
*
specifically indicated having attended a prior LSEW or LSPAN
No. number, LS Lynch syndrome, Q&A question and answer, N/A not assessed