. Author manuscript; available in PMC: 2018 Apr 1.

Published in final edited form as: J Genet Couns. 2016 Oct 12;26(2):232–243. doi: 10.1007/s10897-016-0015-1

Table 3. Survey Items for ongoing LSPAN Development.

Meeting assessed	Question	n	Result
LSPAN1	Ever diagnosed with cancer	13	Yes 62 %
LSPAN1	Ever diagnosed with cancer	13	No 38 %
LSPAN1	Undergoing or planning cancer treatment	13	Yes 0%
LSPAN1	Undergoing or planning cancer treatment	13	No 100 %
LSPAN2	Preferred method of contact	12	Email 92 %
			Phone 8 %
			Mail 0 %
			Other 0 %
LSPAN2	Usefulness of having a genetic counselor present during support group sessions	12	Very useful 33 %
			Useful 33 %
			Somewhat useful 8 %
			Not useful 25 %
LSPAN2	Comfort level with having a genetic counselor present during support group sessions	12	Very comfortable 67
			Comfortable 25 %
			Somewhat comfortable 8 %
			Not comfortable 0%

These items aided the development of LSPAN and were assessed in Post-Meeting Surveys from Lynch Syndrome Patient Advocacy Network Meetings 1 and 2

LSPAN Lynch Syndrome Patient Advocacy Network