Table 4.
Answers to questions asked equally to adolescents, parents and adults
| cohort 1a mean answer (SD), n = 38 | cohort 1b (parents) mean answer (SD), n = 38 | P value cohort 1a vs 1b | cohort 2a (pp) mean answer (SD), n = 54 | P value cohort 2a (pp) vs 1a | P value cohort 2a (pp) vs 1b (parents) | cohort 2b (cp) mean answer (SD), n = 54 | P value cohort 2b (cp) vs 1a | P value cohort 2b (cp) vs 1b (parents) | P value cohort 2b (cp) vs 2a | |
| Q 1 “appreciate more intense support during transfer” | 2.111 (1.37) | 1.421 (0.98) | 0.01 | 2.151 (0.91) | NS | < 0.001 | 1.541 (1.19) | 0.040 | NS | 0.001 |
| Q2 “no special adolescent outpatient clinic days” | 2.471 (1.56) | 2.421 (1.64) | NS | 3.411 (1.66) | 0.002 | 0.010 | - | -- | - | -- |
| Q3 “no patient-doctor alone (parent-free) time” | 2.161 (1.42) | 2.681 (1.66) | NS | 2.911 (1.62) | 0.030 | NS | 3.631 (1.25) | 0.001 | 0.010 | 0.006 |
| Q4 “no collaborative activities after the outpatient appointment” | 2.031 (1.40) | 2.291 (1.45) | NS | - | - | - | - | - | - | - |
| Q5 “no interest in education or transition programs” | 3.551 (1.54) | 4.131 (1.23) | NS | 2.721 (1.34) | 0.005 | < 0.001 | 4.191 (0.91) | NS | NS | 0.001 |
| Q6 “transition program starting age” | 14.082 (2.22) | 13.872 (2.22) | NS | 15.442 (2.01) | 0.003 | 0.010 | 15.092 (1.95) | 0.040 | 0.012 | 0.010 |
| Q7 “prefer seminars outside the e clinic” | 3.031 (1.40) | 2.951 (1.53) | NS | - | - | - | - | - | - | - |
1
1 = I agree, 2 = I mostly agree, 3 = neither, 4 = I mostly disagree, 5 = I disagree;
2
Mean age in years (standard deviation). Cohort 1a: Pre-transfer patients; Cohort 1b: Parents of pre-transfer patients; Cohort 2a (pp): Post-transfer patients from their past adolescent perspective pre-transfer; Cohort 2b (cp): Post-transfer patients from current perspective; NS: Not significant (P > 0.05), P values were calculated using Mann-Whitney U tests.