Table 4.

List of first cycle codes and focal areas.

Framework region and first cycle descriptive codes		Focal area
AYA survivor well-being
	Barriers to care and lack of access to care	Physical concerns
	Awareness of late effects
	Use of care plans
Educational needs
	Personal reflection on survivorship	Psychosocial concerns
	Need for community and peer sharing
Needs of daily living
	Costs of past care	Financial and insurance concerns
AYA survivor education
	Need for survivorship education	Health literacy
	AYA use of apps and digital technology
	Use of survivorship plans
Information-sharing practices
	AYA self advocacy	Training and education
	Lack of ability to communicate with physicians
Health care professional education
	Age-appropriate care	Survivor education and training
	Lack of awareness of late effects	Provider education and training
	Lack of knowledge of AYA needs	Provider time constraints
	Lack of knowledge of Seton AYA clinic
	AYA population sparseness and fragmentation
	CME uptake and professional education programs
Survivorship clinic
	Referrals and transitions in care	Insurance coverage concerns
	Coordination with navigators
	Use of survivorship plans with patients
Cancer advocates
	Advocates role in information sharing	Information gathering and sharing
	Attitudes about AYA research	Delivery of resources
	Lack of knowledge of Seton and other community programs
	Family and caregiver needs
	Lack of survivorship care plans
	Lack of information for nonmedical needs
Seton Healthcare Family and community physicians
	Impact of AYA educational programs	Financial and human resources
	Improved knowledge of Seton AYA program	Sustainability
Political, economic, and cultural societal support
	AYA political advocacy	Resources
	American College of Surgeons requirements for survivorship care plans	Influence and power
		Practice change