Table 2.
Narrative typologies and supporting codes
| Proband | Parent | |
|---|---|---|
| Restitution Narrative (total) | 4 | 10 |
| Codes | ||
| Healthy, sick, with expectation that health would be restored | 3 | 3 |
| Acceptance of a new normal inclusive of the illness/disorder | 1 | 7 |
| Codes | ||
| Chaos Narrative (total) | 20 | 20 |
| Disorganization in description of illness and/or symptoms | 14 | 2 |
| Suffering and loss | 19 | 9 |
| Fear and uncertainty/difficulty making future plans | 9 | 16 |
| Searching for legitimacy | 7 | 1 |
| Codes | ||
| Quest Narrative (total) | 1 | 17 |
| Focus on the positive attributes of self/child/family | 16 | |
| Individual/parent taking control and advocating/identification of new strengths | 14 | |
| Hope that something will be gained for others | 1 | |