Table 1.
Instruments of the study protocol
| Measurement/Variable | Measurement instrument/Items |
|---|---|
| Resident | |
| Dementia stage | Global Deterioration Scale (GDS) |
| Cognition | Brief Cognitive Rating Scale (BCRS) |
| Mini Mental Status Examination (MMSE) | |
| Clock-drawing Test | |
| Functioning | Functional Assessment Staging Test (FAST) |
| KATZ Index of Independence in Activities of Daily Living | |
| Mobility | Timed Up and Go Test |
| Nutrition | Mini Nutritional Assessment (MNA, short form) |
| Pain | Visual Analog Scale for Pain (VAS) |
| Pain Assessment in Advanced dementia (PAINAD) | |
| Behaviour | Behavioural Pathology in Alzheimer’s disease Frequency Weighted Scale (BEHAVE-AD-FS) |
| Empirical Behavioural Pathology in Alzheimer’s disease Rating Scale (E-BEHAVE-AD) |
|
| Quality of Life | Quality of Life in Alzheimer’s disease Scale (QOL-AD participant version) |
| Sociodemographic data | Age, sex, date of institutionalization, nationality |
| Medication | Type and dosage |
| Dental status | Prosthesis (yes/no), other |
| Number of falls in the last 6 months | Chart Review |
| Number of hospital stays | Chart Review |
| Needs Assessment | Focus groups and qualitative interviewsa |
| Care Team | |
| Person-Centred Care | Person-Centred Care Assessment Tool (P-Cat) |
| Burden | Professional Care Team Burden Scale (PCTB) |
| Sociodemographic data | Age, sex, occupational group |
| Needs Assessment | Focus groups and qualitative interviewsa |
| Relative | |
| Sociodemographic data | Age, sex, relationship link to resident |
| Number of Visits | Daily, Every 2 or 3 days, once per week/month, other |
| Quality of Life | Quality of Life in Alzheimer’s disease Scale (QOL-AD family version) |
| Needs Assessment | Focus groups and qualitative interviewsa |
| Environmental Factors | |
| Organisational Category | A: Federal State, Municipality, Church & private CZ: Municipality, For-profit, non-profit |
| Size of Institution | Number of organizational units, employees, rooms and residents |
| Room facilities | various listed facilities |
| Social Activities | Number per month, duration per unit, number of participants |
| Care Concept | Name or description of the care concept |
aQualitative part of the study will be described in a separate publication