Table 1.
Demographic characteristics of muscular dystrophy and fragile X syndrome cases reviewed from active and passive surveillance data sources
| Muscular Dystrophy | Fragile X Syndrome | |||||||
|---|---|---|---|---|---|---|---|---|
| Active n = 384 | Passive n = 3305 | Active n = 141 | Passive n = 795 | |||||
| Demographic Characteristic | ||||||||
| Age Group (in years) | n | % | n | % | n | % | n | % |
| 0 to 9 | 26 | 6.8% | 286 | 8.7% | 12 | 8.5% | 80 | 10.1% |
| 10 to 19 | 57 | 14.8% | 477 | 14.4% | 35 | 24.8% | 169 | 21.3% |
| 20 to 29 | 62 | 16.1% | 389 | 11.8% | 31 | 22.0% | 202 | 25.4% |
| 30 to 39 | 59 | 15.4% | 338 | 10.2% | 23 | 16.3% | 114 | 14.3% |
| 40 to 49 | 37 | 9.6% | 405 | 12.3% | 12 | 8.5% | 94 | 11.8% |
| 50 to 59 | 53 | 13.8% | 483 | 14.6% | 14 | 9.9% | 57 | 7.2% |
| 60 or older | 90 | 23.4% | 927 | 28.0% | 14 | 9.9% | 79 | 9.9% |
| Race | ||||||||
| White | 262 | 68.2% | 1998 | 60.5% | 66 | 46.8% | 433 | 54.5% |
| Black (African American) | 75 | 19.5% | 805 | 24.4% | 57 | 40.4% | 286 | 36.0% |
| Other/Unknown | 47 | 12.2% | 97 | 2.9% | 18 | 12.8% | 76 | 9.6% |
| Receiving Care in Active Counties | 384 | 100.0% | 1428 | 43.2% | 141 | 100.0% | 231 | 29.1% |