Table 1.
Patient and Physician Preference List
| Domain | ID | Full Question | N (%) chosen |
|
|---|---|---|---|---|
| Patient (66) | Physician (27) | |||
| Foundational consent information | 1* | Why my physicians are testing for biomarkers | 42 (64) | 25 (93) |
| 2* | What the benefits of testing for biomarkers are | 58 (88) | 24 (89) | |
| 3* | What the risks of testing for biomarkers are | 28 (42) | 15 (56) | |
| 4* | What the biomarker test won't do for me and other limitations | 29 (44) | 19 (70) | |
| 5* | If the biomarker testing will cost me anything | 16 (24) | 16 (59) | |
| Treatment and results | 6* | If the biomarker test will help decide my treatment | 58 (88) | 27 (100) |
| 7* | If the biomarker test will tell me how serious my disease is | 45 (68) | 14 (52) | |
| 8* | If the biomarker test will help my family members learn about their risks of cancer or other diseases | 47 (71) | 7 (26) | |
| 9* | What will happen if the biomarker test doesn't show anything | 25 (38) | 10 (37) | |
| 10* | What will happen if the biomarker test shows something about me that is important for my health but has nothing to do with the cancer I have now | 37 (56) | 5 (19) | |
| Additional information | 11* | How the biomarker test is done (what will they do to me, like take blood, do a biopsy etc.) | 30 (46) | 15 (56) |
| 12 | Who will test the tissue or blood sample that I give for the biomarker test | 7 (11) | 1 (4) | |
| 13 | Who will know and have access to my results | 11 (17) | 8 (30) | |
| 14 | What happens to the tissue or blood sample after the biomarker test is done | 8 (12) | 1 (4) | |
| 15* | A short explanation of cancer genetics | 35 (53) | 9 (33) | |
| 16* | What a biomarker is | 28 (42) | 17 (63) | |
| 17 | A referral to a genetic counselor or other person who can explain biomarker tests | 16 (24) | 2 (7) | |
| 18 | Information about how I can get extra support (ex: social workers, psychologists, other cancer patients) | 8 (12) | 1 (4) | |
*
Items in combined patient/physician preference list. The patient/physician correlation was statistically significant (correlation coefficient: 0.71, 95% CI: 0.37, 0.88), p=0.001).