Table 4. Comparison of research recruitment registry characteristics from information available on public sources.

Research Registry	Description	Registry Inclusion	Phenotyping	Contact	Biobank
Medical University of South Carolina	Population based, single institution	Population based, within EHR	EHR defined	Yes	Yes
University of Pittsburg (http://www.researchregistry.pitt.edu) [19]	Multi-institutional	Self-defined but some inclusion from participating clinical outpatient offices and MyUPMC	Patient defined	Yes	No
University of Kansas Medical Center (KUMC) and other regional hospitals and universities (https://pioneersresearch.org/) [16]	Multi-institutional	Self-defined, and community engagement efforts	Patient defined and, when possible, also connects EHR to participants.	Yes	No
ResearchMatch (http://www.researchmatch.org) [14]	Institutionally independent, national	Self-defined	Patient defined	Yes	No