Table 5.
Money spent as a result of care-giving (n = 1504) (£GBP – calculations based on ‘n responded > 0’).
| Indicated n^ (%) | Reported n+ (%) | Mean (SD) | Median | Inter-quartile range (25–75) | Missing n (%) | |
|---|---|---|---|---|---|---|
| In last 3 months of life | ||||||
| Help from others | ||||||
| Nursing home/private care home | 82 (5.5) | 74 (4.9) | 3138.58 (3384.28) | 2000.00 | 487.50–5000 | 1422 (94.5) |
| Privately employing nurse/carer | 67 (4.5) | 63 (4.2) | 1785.90 (2979.05) | 500.00 | 160–1500 | 1437 (95.5) |
| Child care | 22 (1.5) | 21 (1.4) | 545.90 (566.73) | 400.00 | 100–852 | 1482 (98.5) |
| Odd jobs not normally paid for | 250 (16.6) | 244 (16.2) | 371.74 (901.14) | 150.00 | 60–337.5 | 1254 (83.4%) |
| Respite/holidays/day trips | 129 (8.6) | 125 (8.3) | 780.08 (1085.06) | 350.00 | 150–1000 | 1375 (91.4) |
| Direct expenses | ||||||
| Medical equipment/care supplies | 390 (25.9) | 377 (25.1) | 289.10 (907.79) | 100.00 | 50–200 | 1114 (74.1) |
| Prescription/non-prescription drugs | 128 (8.5) | 119 (7.9) | 107.47 (279.26) | 30.00 | 20–80 | 1376 (91.5) |
| Household bills | 410 (27.3) | 363 (24.1) | 235.62 (395.03) | 129.00 | 80–300 | 1094 (72.7) |
| Travel expenses | 760 (50.6) | 720 (47.9) | 208.20 (424.17) | 100.00 | 48.5–207.5 | 744 (49.5) |
| Meals/snacks while out | 670 (44.6) | 631 (42.0) | 113.10 (213.40) | 50.00 | 30–100 | 834 (55.5) |
| Extra food/supplements/vitamins | 323 (21.5) | 296 (19.7) | 123.03 (313.98) | 55.00 | 30–120 | 1181 (78.5) |
| Other | 194 (12.8) | 179 (11.9) | 602.27 (1481.12) | 150.00 | 60–400 | 1310 (87.1) |
| Total spend (sum)a | – | 1090 (72.5) | 1025.00 (2024.75) | 370.00 | 150–919 | 414 (27.5) |
| Any time since diagnosis | ||||||
| One-off expense | 254 (16.9) | 240 (16.0) | 8759.84 (44902.50) | 2000 | 756.25–5875 | 1250 (83.1) |
^
NB: Indicated n – participants who indicated they did spend money on that item. Total who indicated spending money in last 3 months of life is n = 1145 (76.1%); total missing data n = 359 (23.9%).
+
Reported n – participants who reported the amount they spent on that item – for ‘one-off expenses’ respondents reported up to three expenses, which were totalled.
A large proportion of missing data is likely to be systematic, rather than missing due to incomplete reporting, as participants were not asked to indicate if they had not spent money.
a
Only those who reported spending money were included.